• DarrellD's Avatar

    DarrellD asked a questionNon-Hodgkin Lymphoma (NHL)

    Looking For The Best Questions To Ask The Oncologist on Friday

    7 answers
    • BigE54's Avatar
      BigE54

      The keyword here is appropriate, not necessarily aggressive. While my diagnosis was not Follicular, it is known as an indolent, slow growing cancer. Aggressive treatment can be the way to go if the cancer itself is aggressive, but if the cancer is not, you should listen if the doctor offers other options. But no matter what, you sound as if you are not going to have a problem getting across to the doctor your feelings, which is always the best way to go. Your treatment plan should be a collaboration between you and the medical professionals you trust with your care.

      over 5 years ago
    • barryboomer's Avatar
      barryboomer

      Have him check out The China Study.....lots of good science.
      YOU may want to check out this site below.

      http://www.chrisbeatcancer.com/

      Barry

      over 5 years ago
    • meyati's Avatar
      meyati

      I asked about quality of life, How long should the treatment last, what's the percentages of remission and how long should the remission last, If it's chemo ask if it's one chemo or a series, ask if radiation is part of the treatment. If they say surgery- ask if this is one surgery or several surgeries-I assumed one surgery for my type of cancer, but my grandson asked this question-and it was several surgeries. Ask what the common side-effects are for any treatment. What's the average time for recovery.
      ASK about the lab work for clotting, anemia, etc. My first oncologist refused to order blood work. I had my primary care order the lab work. To me that was a good clue that something was wrong. I got a new oncologist. I saw him last week, and he told me how happy he was that my PCP ordered the lab work last year, as it gave him a better picture of how I'm doing.

      The one thing that I wished that I could have done was to take somebody neutral in with me to the first visit. On the second visit, I took in a grandson, who said that they wouldn't allow me to go to him. I was trying to make my mind up. I had already requested a new oncologist, but I wasn't adamant about it.

      make sure that your doctor is practicing MED 101. If he doesn't do lab work, doesn't answer these basic questions, to be polite, you need a second opinion. Another clue to change doctors is if you're told that you're too detail oriented, and your asking too many questions- run

      On the first radiology visit- he said- I can give you about a 90% chance of killing this, because
      it is a small field, etc. I read the reports of the surgeon and while her points are valid, but she can't give you a guarantee of so many years. I can't either, but you'd have a better quality of life. The problems are-blah,blah. I wasn't able to talk to the oncologist, and he hasn't released the reports from your 2 visits. i asked a few questions-He said you aren't asking very many questions. I told him that he answered them-how long the treatment would be, side effects-possible chronic conditions caused by this, quality of life.

      You can make this into an orderly list. Start with #1 what treatments would you recommend and why?
      #2 How long would the treatment last? What side effects would there be? Would there be permanent side effects?
      #4 What is the success rate of this treatment? How long does remission usually last?
      #5 You are going to order lab work, aren't you? What other tests do you run? This is the case of more tests the better. If you have to point out that clotting has to be considered, hep, anemia, get another doctor.
      Good luck and you can talk to me anytime you want.

      over 5 years ago
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    DarrellD started following

    User: shelley50

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    DarrellD wrote on misttwin666913's wall

    My husband is 74 and his follicular lymphoma was discovered in his colon during a routine colonoscopy. We don't know the stage yet. I am interested in the location of your spouse's lymphoma and what surgery was done.

  • DarrellD's Avatar

    DarrellD asked a questionNon-Hodgkin Lymphoma (NHL)

    How can I find support for spouse/caregiver (me)? The patient is my husband.

    15 answers
    • meyati's Avatar
      meyati

      Hi darling, it's me again.Try myadvocatehelps.com You might qualify, it has more nitty gritty details. It works for about a dozen insurance-senior health plans. Like I didn't know that in my city, the city has a program that picks people up and takes them to a community dinner. ACS didn't help with things like this.

      They also help with getting help with medicare part D discounts, house keeping -They are social service coordinators.

      over 5 years ago
    • dbennett's Avatar
      dbennett

      sounds like you are on the hurry up and wait game. First I would like to take breath....... Now get a second opinion on his dianosis. there are several treaments to choose from, if you are luicky he may only need a small amt of radiation. lesser ot the two evils. I you have any qeustions pls feel free to write. God Bless

      over 5 years ago
    • dbennett's Avatar
      dbennett

      There is a website called care.com that may be a good resource.

      over 5 years ago
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