• Darryl1's Avatar
  • Darryl1's Avatar

    Darryl1 shared an experience

    Procedure or Surgery (Surgery): This is Diane, my husband was admitted to the hospital,he has a tumor on his spine that was pushing against his c6.The tumor was making it hard for him to walk and his legs were getting numb.The tumor was paralyzing him.If it wasn't for the dr getting an MRI done we wouldn't have known,they are going to try a drastic radiation and if that don't work they are going to try surgery.The only bad thing with that is his bones are not strong.I will let you know what happens later today

  • Darryl1's Avatar

    Darryl1 posted an update

    Well, the cancer has gotten more aggressive,they have me on a radiation called xofigo and on a pill called standing.I also have so many pain meds if it wasn't for my wife I wouldn't know what to take when.If these treatments don't work I'm afraid they might not have anything else

    2 Comments
    • grammy14's Avatar
      grammy14

      Peace and prayers for you.

      about 7 years ago
    • mgm48's Avatar
      mgm48

      Check out clinical trials. They need participants and it might help someone after we're gone.
      Keep it positive and smile :)

      about 7 years ago
  • Darryl1's Avatar

    Darryl1 posted an update

    Psa went from 1082 to 1710 in 2 weeks.The dr took me off chemo since its not working and now wants to try a new type of radiation that's only been approved 6 months ago.I might as well try it as I have nothing else to lose.

    3 Comments
    • GregP_WN's Avatar
      GregP_WN

      Is that Proton Therapy?

      about 7 years ago
    • Darryl1's Avatar
      Darryl1

      I don't think so,it's called xofigo- radium223 dichloride injection.its for cancer that has spread to the bones and cancer that is resistant to medical treatments.Im getting frustrated because they haven't set up an appt. yet and when I called they had no record of me in there tobe seen yet

      about 7 years ago
    • GregP_WN's Avatar
      GregP_WN

      Oh man that gets frustrating. I hate it when I have to do other people's jobs. Yeah that's different than Proton Radiation. IT's rather new I was curious to see how it worked. Keep us posted I am curious about your treatment and how well/quick it works for you.

      about 7 years ago
  • Darryl1's Avatar

    Darryl1 asked a questionProstate Cancer

    Psa levels up

    6 answers
    • mgm48's Avatar
      mgm48

      Heck yes - increase in PSA while scans were stable was my "normal" for quite some time. Doctor had a 2 of 3 rule - if there were only 1 item out of wack no change in treatment. The 3 are PSA, Scans and patient's clinical presentation (pain, etc). I've been going with that rule for a couple years now and it seems to work.

      Keep it positive and smile :)

      about 7 years ago
    • tspoon's Avatar
      tspoon

      We had the same thing and we added Lupton which brought the PSA back down. This continued for 6 more treatments and I said quit because chemo made me so weak after 13 rounds.

      about 7 years ago
    • mgm48's Avatar
      mgm48

      Remember PSA is not cancer. It is only an indicator associated with the prostate. I was on a treatment for over 7 months where the scans came back Stable and PSA rose. We only changed treatments when my clinical presentation began to decline (for me the bone pain began to go back up).

      Keep it positive and smile :)

      about 7 years ago
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    Darryl1 started following

    Question: Psa levels up