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    dcjjones posted an update

    Celebrating 20 years of being Cancer free. Don't know if I am current enough to be useful on this site but can always offer a positive attitude and a personal chearleader!

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    • GregP_WN's Avatar
      GregP_WN

      Thank you for posting this. You absolutely are valuable and an inspiration on the site. Those who are just starting out need to see long term survivors so they can see that it can be done. Feel free to chime in on any question that is asked, everyone's input is valuable.
      Thanks for being with us.

      over 3 years ago
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    User: DaveWaz

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    dcjjones started following

    User: sailor

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    dcjjones posted an update

    I didn't see further designation for Leiomyosarcoma. Anyone know if this exists.

    2 Comments
    • DaveWaz's Avatar
      DaveWaz

      DCjjones,

      We have leiomyosarcoma in our cancer hierarchy but it is associated with endometrial cancer. You did not have this did you?

      over 4 years ago
    • dcjjones' Avatar
      dcjjones

      Dave,
      This was my diagnosis. Sloan Kettering did the pathology report. I was told by Dr's that they had never seen this type of Cancer where I had it. This is why they sent me to Mayo Clinic for first few consultations and then referred me to Hematology Oncology of Indiana whom I have been with since 1992.

      over 4 years ago
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    dcjjones shared an experience

    Celebration (Anniversary): January marks the 20th year since my cancer diagnosis

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    dcjjones shared an experience

    Radiation (External radiation ): I had radiation on my skull following my second surgery to my head. At this point I was cancer free. The doctors recommended a radiation regiment once a week for six weeks. The idea was that if there were any residual cancer cells the radiation would kill the cells. This seemed to have work as I am cancer free today. Major side effect was that the Radiation treatment destroyed the hair follicles on the side of my head that the radiation was done. I have shaved my head ever since as it would look to funny growing out my hair on one side of my head and not the other. I can't say definitively that the radiation destroyed any residual cancer cells but the loss of my hair was worth the peace of mind.