• Dean1010's Avatar

    Dean1010 asked a questionMultiple Myeloma

    Velcade and Dexomexathon

    23 answers
    • lynniepoo's Avatar
      lynniepoo

      We haven't heard from you Dean to let us know how you are doing. Hopefully you have made the best decision for YOU whatever that might be. I agree that a support group is a wonderful way to reach out and get other experiences. The closest one to me is an hour and a half away and meets at ten am which is just too early for me. This site is my support group. It really helps to know you are not alone with this crazy disease. I laugh and I cry along with some of the posts and sometimes get angry when I read some experiences my "friends" have had with insensitive people. I call all of us on this site with MM my friends as we share so much. I will forever be grateful to everyone for the support and shared information.

      almost 6 years ago
    • Quay21's Avatar
      Quay21

      MM is not my Life, I will do what I need to do. I've been thru radiation for 26 sessions then chemo. Revlimid & dexamethasone back to radiation to SCT to chemo now being 6 months out from my SCT & after my counts & scans, I am currently in Remission. Yes, I still have my bad days with neuropathy, back pain, blurred vision, etc..however I put my trust & faith in my Lord Jesus Christ. I will not accept not giving a fight. I am 31 years old with 2 little girls 10 &6 and I plan to be here to watch them grow. This group has been helpful, I am grateful to hear your stories and be able to tell mine but I can't take negativity. Be thankful that your here breathing another day, be thankful for those who are in your life. Enjoy each day & live your life.

      over 5 years ago
    • KatieL's Avatar
      KatieL

      I am wondering how you are doing, also. (Love the cat picture, have 6 feline friends.) I am a seven-year myeloma survivor. There have been plenty of ups and downs, but I still am able to
      travel, do things with my family, live a mostly normal life. Fatigue is often a problem--but I just
      go with it, do less that day, the next day is usually better. Would I do all the treatments ( incl.
      auto stem cell transplant) again? Absolutely. There are even better medicines now than when I
      was diagnosed, docs know more about combinations that work. I have met people who have been
      in durable remissions for years and years. It may not be called a cure, but for some it probably is.
      Good luck on whatever you decide or have decided.

      about 5 years ago
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    Dean1010 shared an experience

    Oh No (Denial --- Who Me? --- What's Cancer? --- No, I Couldn't Have That!): The diagnosis from the bone marrow biopsy was "Consistent With Multiple Myeloma." My Doctor says that's different from a diagnosis of "Multiple Myeloma". I think we're splitting a few hairs here.

    So I'm in limbo for another 30days, until more tests are run. The waiting is the killer part. Then I have to decide between Chemotherapy and Radiation, VS. Oxycodone and Jack Daniels. Tough decision.

    3 Comments
    • DJS's Avatar
      DJS

      My doctor described my Multiple Myeloma the same way, but since I also had Non-Hodgkins Lymphoma and the treatment was the same there was no point in pushing the issue. I did have more tests run -- a biopsy, for example -- but my husband and I were so sure that I wouldn't have cancer that there was no "killer waiting part." Well....we have been known to have been wrong before! At any rate, I'm on the other side of the diagnosis now, completely clear (R-CHOP, no radiation), so Oxycodone or Jack Daniels if/when needed, but whatever the results of the tests just know that for many of us it just becomes a memory. Good luck!

      over 6 years ago
    • KatieL's Avatar
      KatieL

      I am wondering what the other tests are that the doctor wants to run. Usually a bone marrow biopsy is pretty definitive, but he/she may want to know further information in order to treat
      what your condition is most effectively. I am a six-year survivor and there are MANY drugs
      to choose from in the multiple myeloma battle arsenal. It also sounds like this may be an
      early diagnosis which is also good news.

      over 6 years ago
    • Therose's Avatar
      Therose

      Not knowing your medical condition prior to diagnosis you might want to contact LLS-Leukemia,Lymphoma Society they give classes and of course ask questions of your doctor. My doctor had me to use chemotherapy they have some designed to target specific cells. I had chemotherapy to lower my M protein cell count then autologous stem cell transplant. You may want to check into clinical trials available. Being a part of clinical trial forces them to keep an eye on your medical condition for period of time. Although the Oxycodone and Jack Daniels sounds good:). You want to be aggressive in dealing with MM your if in fact that what it is. Waiting is not easy because it is the unknown. Just keep in mind once you know for sure have plan of action.

      over 6 years ago