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    Deb76 asked a questionBrain and Spinal Cord Tumors in Adults

    What is the difference between Pallitive Care and hospice?

    • nancyjac's Avatar
      nancyjac

      Palliative care focuses on relieving and preventing the suffering of patients, basically by treating their symptoms, rather than attempting to cure. Hospice care focuses on bringing comfort, self-respect, and tranquility to people in the final months of life. Those in hospice are treated with palliative care, but many in palliative care are not in hospice. Generally, to qualify for hospice care, the patient's doctor must write an order indicating that the patient is expected to live for 6 months or less. Palliative care can span many years for a patient with a chronic disease or a patient who is in treatment to cure a disease. For instance when an oncologist prescribes remedies to ease the side effects of chemo, such as nausea, diarrhea, etc., that is palliative care complementary to cancer treatment.

      over 4 years ago
    • carm's Avatar
      carm

      Hi Deb, I work in palliative/ hospice care. If you go to the website compassion and choices and in the search box type in palliative care you can find an article that explains the difference. Palliative is treatment that extends quantity and quality but does not cure. Hospice is comfort care without treatment just making you comfortable until death. Hospice is 6 months or less. End of life care which is what I do isgenerally 2 weeks or less and is just preparing the patient/ family for the final step and then coaching them thru that final process. Hope you check out the site, Carm RN.

      over 4 years ago
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    Deb76 asked a questionBrain and Spinal Cord Tumors in Adults

    What if a person chooses not to have radiation and chemo for their Glioblastoma? I know the Drs say 6 months? What are the end stages like?

    4 answers
    • carm's Avatar
      carm

      Deb, I can answer your question but not on this forum. You can contact me from my homepage if you want that answer, Carm.

      over 4 years ago
    • misha41510's Avatar
      misha41510

      Hi Deb,
      I'm sorry to hear about your mom. My mom passed away from stage 4 Gliosarcoma several months ago. She chose to do treatment, so I'm not sure about your first question.
      Your second question about the end stages really depend on the location of the tumors. My mom's began in her right frontal lobe and spread throughout the right side of her brain. The symptoms started as mostly cognitive and progressed to physical as the cancer progressed. At first, she was having trouble planning or thinking ahead or making even minor decisions. Later one she had balance problems (not to mention the seizures). And later on she lost movement and feeling in the left side of her body so she couldn't walk anymore. Eating became difficult because the left side of her mouth would open all the way. Also around the same time, she stopped talking. Not entirely, but communicating verbally became very difficult for her. As did writing and drawing. Sometimes she would just look at you with big eyes, just staring, almost like a child. you could tell she had something to say, but she couldn't say it. As it got closer to the end, she get weaker and started eating less. One morning, she just didn't wake up. She was in a coma-like state for 10 days before finally passing away. I've heard that most people don't last that long in that coma-like state. It's usually only for a couple of days. But I think she was really holding on.
      I hope this was helpful and will prepare you for your mom's end of life. I know it can be a very emotional and stressful time. I wish you the best.

      over 4 years ago
    • Deb76's Avatar
      Deb76

      My mothers tumor is in her right front temperal lobe. She now has short term memory loss, some talking difficulty, incontinance, can not walk but a few steps and somedays no walking,mood swings and some swallowing issues. Just wondering how long she has to live this way. Horrible!

      over 4 years ago
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    Deb76 shared an experience

    Decision Point (Made decision not to have radiation for mom or chemo): Mom is 76 and has multible health issues. She has Parkinsons and diabetis and now a Glioblastoma. She no longer can walk on her own and no short term memory. She has good and bad days and most days just wants to be better but is so tired of being sick and sitting at a nursing home in a wheel chair now. Drs said 6 months without treatments and maybe a year with treatment. My question is what would that additional 6 months of life be? Is sitting in a bed or wheelchair in a nursing home, no short term memory really living? She has a living will that states if I have a terminal illness do not give me anything that will prolong my life. After alot of thinking we are honoring her wishes. This was such a difficult desicion to make. Really tough. Some one said to me well its all about quailty of life not quantity. I just want her to be happy and in no pain.

    2 Comments
    • Boombeen's Avatar
      Boombeen

      If it was me, I'd take the the short term. Just let me go without pain. What sence does it make to let a person go on when there is no hope?

      over 4 years ago
    • DeanaBeana's Avatar
      DeanaBeana

      I'm so sorry to hear this news. I know that decision was probably one of the hardest for you. I know if it were my Mom I would honor her wishes too. I pray that God wraps his arms around your Mom and all the family during these difficult times.

      over 4 years ago
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    Deb76 shared an experience

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