• DebbieF's Avatar

    DebbieF shared an experience

    Side Effects (Hair loss (alopecia)): I am currently receiving weekly carbotaxol chemo ,My hair was thick healthy and almost to my butt .Pennsylvania University..said i would most definitely loose my hair before 3rd treatment ..so I cut it like I was joining the military ..loosing your hair in clumps ..is very traumatizing .I am currently on 3rd round of weekly treatment with nupogeon 4 times a week (also causes hair loss )my hair never fell out of thinned .If someone told me there was a one in a thousand chance ..I wouldn't have shaved it .I did not use a cold cap ..I did take bioten every day ..

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    • willie's Avatar
      willie

      When my wife's hair started coming out, we went into the backyard with my clippers and took it down CLOSE to the scalp---she couldn't bear the slow pain of losing it a clump at at time. I did the cutting. A very bonding experience, and I'm glad we did it.

      about 3 years ago
    • Gumpus61's Avatar
      Gumpus61

      The cutting of the hair is a rite of passage. We husbands don't really mind the bald part....but no eyelashes or eyebrows is a little weird. The good news is it will come back. My wifes thin hair came back thicker and fuller. She hated it thin, she hated it thick, she didn't mind being bald so much.....LOL ! we tried the wig thing but landed on scarves and fun hats.....best wishes to your recovery Debbie !

      about 3 years ago
  • DebbieF's Avatar

    DebbieF shared an experience

    Drug or Chemo Therapy (Chemotherapy): It's A lifesaving measure ,so side effects are minimal when you consider the alternative ,but weekly chemo 2 hours away with 4 times a week nuopengeon would be impossible to do

  • DebbieF's Avatar

    DebbieF shared an experience

    Oh No (Other): My prognosis is very poor .I was diagnosed with malignant acities,survival 1-4 months .I chose chemo because they tried surgery and my entire stomach was covered with concentrated malignant cells ,and many tumors that were wrapped around other organs,making it impossible to remove without spreading .The chemo is working well .I had a 1-4 month life sentence..tomorrow is the start of the 4 th moth I feel better than ever ,and my hair never fell out .I learned everyone reacts different .

    1 Comment
    • kalindria's Avatar
      kalindria

      When I was diagnosed (stage IV), I only had 5 months to live and it's been several years now. Your own spirit and will along with current treatments will have a huge impact on your life expectancy. I'm still hoping to dance at my grandson's wedding -- and he's 4! It's always good to have something to look forward to.

      Also remember, a lot of the statistics on life expectancy are based on old data and new treatments are developed every year. Neither one of us came with an expiration date stamped on us so let's live while we're here!

      Congrats on not losing your hair too.

      about 3 years ago
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