• debi11's Avatar
  • debi11's Avatar

    debi11 asked a questionBreast Cancer

    I am considering having my genetic test redone. Has anyone done this?

    6 answers
    • nancyjac's Avatar
      nancyjac

      What test? There are dozens. Some are for gene identification other are to determine levels of certain genetic markers in the blood. So depending on which test more or less determines if they is any benefit to periodic retesting.

      almost 4 years ago
    • Mel's Avatar
      Mel

      Yes, I had genetic test done also my oncologist's recommendation mine came back BRCA1 positive.

      almost 4 years ago
    • karen1956's Avatar
      karen1956

      Why do you want to re-do the genetic testing? and do you mean the BRCA test?

      almost 4 years ago
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    debi11 asked a questionBreast Cancer

    After having breast cancer I had the genetic testing done it was inconclusive for the genes but I was told there was a mutation somewhere.

    5 answers
    • Nancebeth's Avatar
      Nancebeth

      My insurance didn't cover it either but I got it anyway as I had 3 of the 4 risk factors. It was negative for the gene mutation and the insurance ended up covering it anyway, as my doctor wrote n amazing letter to them.

      almost 4 years ago
    • barbaraanne's Avatar
      barbaraanne

      Since I was diagnosed w/Triple Negative breast cancer & just turned 50, it was highly recommended I be tested for the gene mutation. I had the comprehensive BRAC Analysis testing along w/BRAC analysis large rearrangement (BART) testing. I was told they may need to do extra testing if it was inconclusive. Did they do the (BART) testing for you? These tests are very expensive, but you need to way the pros & cons. I was told I had to remove my breasts & ovaries if the testing was positive. I was so grateful that it was negative for the mutation, because I was not ready to go down the road, if I didn't have to. The company that performs the test is Myriad Genetics Lab Inc, perhaps they can assist you. I was fortunate that my insurance paid, I really can't believe they didn't even question it, they question every thing else... You should also speak w/someone at your cancer ctr, I had a Nurse navigator who was very helpful with everything. Good luck to you..Barb

      almost 4 years ago
    • SueRae1's Avatar
      SueRae1

      I was lucky, my insurance paid for BRACA testing including all sub-types, which came back negative. I expect the results of a BreastNext Panel in the next few weeks - it is checking for mutations in 14 sets of gene linked to Breast and other cancers - I was told I would get one of 3 results for each gene tested. 1)Positive 2)Negative - no known mutation based on current information 3)inconclusive - the gene is not "negative" but at this point they don't know if the difference found is a normal or a variation or a cancer causing mutation. Perhaps that what your doctor meant my "inconclusive" speak with her and/or a geneticists to get clarity.

      almost 4 years ago
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    debi11 posted an update

    Thank you all for your answers