• Debra's Avatar
  • Debra's Avatar

    Debra asked a questionNon-Hodgkin Lymphoma (NHL)

    Anyone have Burkitts Lymphoma with high dose chemo "Magrath Reginem" side effects that last forever?? I had stage 4

    • erie94's Avatar
      erie94

      So sorry about your condition. I was told that any lymphoma is treatable at any stage. I'm not sure if it's true, but it gave me high hopes although my tumor was in a unique "presentation," or rather larger than normal. I hope you do find someone with some information that may help!
      Best wishes to you!

      over 4 years ago
    • ChristineT's Avatar
      ChristineT

      Yes, but I had the high dose HyperCVAD protocol. I still have some of the side effects 3 years later

      over 4 years ago
    • Taleya's Avatar
      Taleya

      Stage 4a, three years after the fact - no evident long term effects so far. Chemo does take a lot out of you, but once you've been in CR for six months to a year with no further treatment you should find yourself back to normal. If this is not the case go chase down a doctor.

      about 4 years ago
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    Debra started following

    User: GregP_WN

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    Debra shared an experience

    Drug or Chemo Therapy (Chemotherapy)

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    Debra posted an update

    I had stage 4 Burkitts Lymphoma and wondering what to except after high dose chemo?

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    • KarenG_WN's Avatar
      KarenG_WN

      You might also want to post this in our Questions section - just click on Questions above in the purple bar.

      over 4 years ago
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    Debra shared an experience

    Procedure or Surgery