• debster's Avatar

    debster wrote on clay's wall

    What are they saying is the cause? Mine was the HPV virus - right tonsil primary. I am almost 11 weeks post treatment and feeling great considering how Draconian the treatments are. You can do this!!!

    3 Comments
    • clay's Avatar
      clay

      I went to see my oncologist today and he stated that it was HPV virus. and that was good and improved my prognosis.

      over 4 years ago
    • clay's Avatar
      clay

      Thank you debster its good to see that someone else in kinda the same boat is doing well. speaking of treatments what treatments did you go through?

      over 4 years ago
    • debster's Avatar
      debster

      33 IMRT radiation treatments and 5 (was supposed to be 7) chemo (cisplatin)....I was hospitalized the last 5 nights.....2 trips to ER for dehydration.....some home health hydration....but no feeding tube I gained 10 lbs pre-treatment (as recommended) and in total lost about 27 lbs (so really only 17)....I still can't taste but I force myself to eat solid food and found some high calorie shakes I can tolerate.....all I want for Xmas are my taste buds! You can do this!!! It sucks but the prognosis is very good:)

      over 4 years ago
  • debster's Avatar

    debster posted an update

    Two months post treatment - no taste buds but feel pretty good considering:) Facing Thanksgiving is tough.....being with food and with strangers is difficult. Family far away. Husband amazing but it is all on him. I plan on cooking him a huge special meal but I am so sad that he has to just stay with me. Trying to concentrate on the good...could use some pep talks! Thanks.....

  • debster's Avatar

    debster started following

    User: GregP_WN