• delia323's Avatar

    delia323 asked a questionSarcoma - Adult Soft Tissue Cancer

    Coming to terms with misdiagnosis?

    11 answers
    • caissg's Avatar
      caissg

      I am very sorry to hear about what you have to go through. But I think you have come to the right place. If you look around here, you will notice that people here are more "forgiving" and live in the now. Past cannot be altered. While it is very tough to go on knowing someone in authority wronged you, be practical. First, you will need lot of energy to cope with your own health. Do not try to complicate it by taking on an added burden of confronting who wronged you. Be glad that God led you to the right doctor in time. After you have sat down and evaluated your life, think what change you can bring to this world. Whatever that change is, follow it. I have found great solace in sharing with groups like these. Even though we are strangers, the group provides great comfort. And I am very thankful for that. Thank the internet! Wish you the very best!

      over 4 years ago
    • danellsar's Avatar
      danellsar

      My husband was misdiagnosed for at least 4-6 months. He started having discomfort and pain, and was told it was indigestion (take antacids), then IBS (eat more fiber), then an ulcer (take acid blockers). They never did ANY scans or blood work, never did an upper GI or anything. He was in more and more pain to the point where he almost couldn't get out of bed. Then they STILL said it was just a GI thing, and prescribed Tylenol with Codeine. After all those months he got the diagnosis of stage 4 metastatic esophageal cancer. All those months he HAD the symptoms and if they'd have done the scan, he would have gotten treatment earlier. Plus, the Tylenol they gave him (in very high doses) likely made the liver involvement much worse.

      I was so angry at first, but you cannot go back and fix the past. You can only go on into the future and hope for the best possible outcome.
      Ellen

      over 4 years ago
    • Dani's Avatar
      Dani

      I do not know exactly what you are going through, but i have also been misdiagnosed. I was told last year my cervix was okay but that by 30 I would get cancer., I didn't do the right research and my doctor had told me to wait till 21 to do anything so I listened to her. Unfortunately that was not the case at all and now a year later they are pretty sure it is cervical cancer. I know how upsetting this could be and it is NOT okay that they missed something so crucial to my health but at this time I have to be ready to fight the long battle ahead of me. I am so scared about what is to come next but I know I have to be strong, and so do you!! No matter what happens you just have to believe in yourself and just know you are going to make it through! I hope that I could help at least a little. Please let me know if there is anything else I can do for you! Xoxo Dani
      PS Do not feel alone you have a lot of us here for you and we will help you through as best we can!

      over 4 years ago
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