• Denise's Avatar

    Denise asked a questionBreast Cancer

    Does anyone on here have metastatic breast cancer?

    23 answers
    • Lola27's Avatar
      Lola27

      I’ve been on Ibrance with no progression in 2 1/2 years. My insurance covers the cost and I have a grant for co pay assistance.

      6 months ago
    • BCMET4's Avatar
      BCMET4

      Glad to hear that. I am also on a grant to pay co-pay but this is my second grant and they don't last for more than about 6 months due to the high cost of Ibrance. you can only use each grant for 1 year. If you use it up before the year is up. then your stuck. You cant apply for that grant until that year is up. Can I ask...what type of grant are you on with whom?

      6 months ago
    • Jamison's Avatar
      Jamison

      I was initially diagnosed with stage 2 ER+ /HER- in 2004. Had the usual surgery, chemo, radiation, then 21/2 yrs of Tamoxifen, followed by 2 1/2 yrs of Anastrazole. Totaling 5 years of adjuvant hormonal blocking medications, with no side effects. MBC diagnosed in 2017 with mets to lung. Now on Letrozole and Ibrance. Out of pocket, Ibrance costs an outrageous approx. $5700/ month. With insurance, the copay is $2300/month. Insanity just to keep living!! Fortunately for this coming year, I am on a grant, and I am doing well on the meds, just a little tired and some low white blood cells. But Neupogen shots boost the low cell counts and naps help a lot. I do whatever I feel like, whenever I feel like it and enjoy the time I have with my friends, so grateful for the life I have. We are all different of course, and our reactions, physically and emotionally will be unique to each situation and medication. It is good to share our experiences here if only to just find a little normalcy in a crazy, unforgiving world of medication and chronic disease. But we are still alive, in whatever shape or form, and we all have a gift to offer, if only to share it here with a kind word of hope to someone else who is struggling. There is no understanding why this happens to us, all we can do is make the best of our situations. The fact that we remain alive enough to appreciate the sunrise and sunset of each day, the laughter of a child, the warm touch of a loved one, ice cream....all reasons to celebrate another day. Do the best you can to see the joy in things and it will change your perspective, if only for a moment.

      6 months ago
  • Denise's Avatar

    Denise started following

  • Denise's Avatar

    Denise started following

    User: TinaY

  • Denise's Avatar
  • Denise's Avatar

    Denise shared an experience

    Oh No (Problem with doctor): Since the onc and pharm tech missed the fact I was allergic to the chemo they gave me, I decided to go to the CTCA and do co-managed care.

  • Denise's Avatar

    Denise shared an experience

    Side Effects (Nerve damage (peripheral neuropathy)): Extreme neuropathy in feet. Couldn't walk.