• dhtdiver's Avatar

    dhtdiver started following

  • Mimmi's Avatar

    Mimmi wrote on dhtdiver's wall

    Sorry, I mean LRF?? What does that mean and can I find the research text on this issue somewhere???

    1 Comment
    • dhtdiver's Avatar
      dhtdiver

      LRF is Lymphoma Research Foundation. There might be an office in your area. Usually once a PET scan all clear, you don't have any more. A pet is a diagnostic tool, not for maintenance. Other scans, CT or MRI are less invasive.

      18 days ago
  • Mimmi's Avatar

    Mimmi wrote on dhtdiver's wall

    From your post before, what does LFR stand for???

  • Mimmi's Avatar

    Mimmi wrote on dhtdiver's wall

    Wow wow wow.. Congratulations..When you "relapsed" in the back 2012, did you feel unwell, so this is how they found out????

    2 Comments
    • dhtdiver's Avatar
      dhtdiver

      No, it felt and looked like a small cyst under my skin. As it turned out, it was due to a bone marrow biopsy I had in 2009 where the hypodermic needle had been minutely contaminated with the DLBCNHL during the routine procedure. This had never been recorded anywhere else, ever. So, my case got published in a hemotology journal as the first instance of this happenning..treatment was 4 rounds of RCHOP21 and broad beam radiation.

      19 days ago
    • Mimmi's Avatar
      Mimmi

      How often did you have PET-scan after the first 12 months in remission? Can you recall?

      19 days ago
  • dhtdiver's Avatar

    dhtdiver started following

  • dhtdiver's Avatar

    dhtdiver started following

    Question: 6 Month Update