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    dhtdiver wrote on Terri707's wall

    Welcome aboard. I was diagnosed with Primary CNS DLBCNHL in my brain-- Oct 2009. Malignant, Aggressive, Inoperable and affecting my entire right side. By March 2010, it was GONE, my right side restored and has stayed gone!! Very intense Chemo & Radiation. Perhaps I might have some experience that could help you with your journey???

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    mrandle wrote on dhtdiver's wall

    Hi. My husband was diagnosed with intravascular lymphoma in the blood vessels of his brain and lymphoma in the lining around his kidneys.
    I am curious--what were the symptoms that led to the diagnosis of your CNS lymphoma?
    Have you had reoccurrence of the CNS?
    After the high-dose Methotrexate, did you experience cognitive problems, and if so did they clear up?
    My husband was diagnosed Oct. 2016 had 7 sessions of methotrexate, 6 sessions of RCHOP concurrently and just got released from a stem-cell transplant.

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      dhtdiver

      Symptoms: loss of the use of my entire right side. No reocurrence of the CNS. Only cognative problem was (& still is) "chemo brain"...a common side effect of all chemo treatments. My dx was in Oct 2009, the use of mtx for my type of tumor was not available until some where after 2005. It is highly likely that if my situation had occurred a bit earlier, we would not be having this conversation.

      about 1 month ago
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    dhtdiver wrote on Bandmom804's wall

    Hi, welcome aboard. I'm 71, in Phoenix and had 2 epsiodes of DLBCNHL: in my Brain Oct 2009 and a recurrance in my lower back Sept 2012.. Both treated with chemo & radiation , both are in complete remission. How are you doin?

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      Bandmom804

      Hi! I've been in remission for 3 years already! Time does fly by. I had RCHOP and no radiation. Mine was in lymph nodes, lungs and on the outside of my left kidney. Been doing OK but I have other chronic medical issues that interfere with my lifestyle. Had an experience with ITP last year and currently have aspergillosis in my lungs. But I always make the best of each day and stay as positive as I can. I have a primary immunodeficiency disease called CVID (Common Variable Immunodeficiency). Basically I don't make any antibodies to fight off infections. It threw a few ringers into my chemo treatments. Nice to meet you!

      about 1 month ago