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    dianep asked a questionPancreatic Cancer

    Stage IV Bile Duct Mestasis to the Lung Cancer

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    • lilymadeline's Avatar
      lilymadeline

      I'm stage IV as well and I've been on chemo for over 3.5 years now. Stage IV is rarely curable but thankfully with many patients it can be controlled for years and sometimes even become dormant or what they call NED....which means "no evidence of disease." The term "remission" isn't being used much anymore by the way, I guess because cancer is so sneaky sometimes. But many stage IV cancers are being treated like a chronic illness now, it is amazing how far that medicine has come in the past few years. And depending on how you respond to your treatments you could do very well for decades, but you probably will always be living under the close watch of your oncologist and still undergoing treatment even if it becomes NED. It sucks, I know that! It is a shock and a terrible lifestyle adjustment as well. But we get through it somehow, I have good quality of life and I am in a stage IV support group so I know many other people who do as well. Please try to find a stage IV support group in your area, I would ask your oncologist for a referral to a local cancer support community if you can't find one by 'googling' And they are very close to finding cures for many cancers, it is realistically possible that new drugs will be developed within a few years that can cure us. I have had cancer in my life for 35 years with family members and now myself and medical science has made incredible gains in that time! Good luck and best wishes!

      about 3 years ago
    • Marichela's Avatar
      Marichela

      I'm in stage IV too with bile duct metastasis to one kidney & liver 2 years now. When the other tumors were shrinking, I got 4 new ones on my liver. Every case is different but unfortunately in my case,maybe yours, is rare & common at the same time common in women of my age because can't show what generate the tumors. The good news are I'm responding during my 3rd session of chemo after prior 2 ones & radio. Only time will tell but 200% positive with my family & friends support. Keep the Faith & let's kick them all.

      about 3 years ago
    • dianep's Avatar
      dianep

      Thank you for your answers. I am glad to see that you are living with it as well as you are while receiving chemo. Chemo is hard, but dare I say you get used to it after awhile. I have made up my mind that I am going to fight as hard as I can so that I can be here as long as I can. I am not ready to give up!! I didn't know they have support groups for stage IV cancer. I will be looking into it as I think this will help me.

      about 3 years ago
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    dianep shared an experience

    Celebration (CT Results): Received my CT results yesterday and it shows no new cancer nodules. The ampullary cancer has stayed the same and some of my lung nodules have shrunk. Would have liked to hear that it all went away, but I am thankful that it is being controlled and even shrinking some.