I can't answer that question, but wanted to say I love gardening too! I have some beautiful plants this year and I enjoy sitting on the patio just watching the hummingbirds and looking at our garden. I hope your study/trial is doing well for you.
My Goodwill
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Dick_K started following
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Dick_K asked a questionSkin Cancer - Melanoma
Vemurafenib Question
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SandiA
4 months agoHi! I was on a clinical trial for stage 4 melanoma. I took yervoy and opdivo. I stopped about three ago. I mainly stopped due to side effects but I was currently NED at the time too. Like you I had and still have some nodules on my lungs and a spot on my liver they feel is not active melanoma. They have remained stable this whole time so they think they may be scar tissue. I have to be honest I was very nervous about stopping treatment, but in my case the side effects were pretty severe and they didn’t give me much choice. But it’s been three years and still doing well. Let us know what you decide and how it goes. I am glad you are gardening. My husband and I are big baseball fans and we get caught up with baseball games over the summer and don’t seem to get to much done. Haha! But it’s fun to have something you enjoy!
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Dick_K
4 months agoWell I pulled the plug, I am no longer taking vemurafenib. My doctor is very certain that what shows on the scans is scar tissue, so sure, they do not do biopsies in similar cases to confirm any more.
I’ve been very lucky with the long term results and tolerance I’ve had. There is a risk of developing drug resistance. If having stopped and there is a recurrence I can go back on the drug. If I stayed and it became resistant, I would need to find another drug.
I will continue with a schedule of three month checkups with her as well as three month full derm exams. Also, for the first year, scans very three months instead of the current six month scan schedule.
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Dick_K started following
Question: Vemurafenib Question
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Dick_K started following
Question: Anniversary
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Dick_K asked a questionSkin Cancer - Melanoma
Another anniversary...
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beachbum5817
9 months agoCongratulations on your 9 year anniversary. I also agree with you on the housework issue. I use all sorts of excuses to avoid it for as much and as long as possible. Take care.
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Question: Another anniversary...
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