- Cincinnati, OH
- Member Since Sep 2012
Their Diagnoses (2)
- Survivor: Triple-Negative Breast Cancer, Ductal
- Patient Info: Finished active treatment less than 5 years ago, Diagnosed: over 6 years ago, Female, Age: 56, HER2 Positive: No, ER Positive: No, PR Positive: No
- View this journey (12 Experiences)
- Survivor: Ovarian and Fallopian Tube Cancer
- Patient Info: Finished active treatment less than 5 years ago, Diagnosed: almost 5 years ago, Female, Age: 56, Stage I
- View this journey (2 Experiences)
Dmh987 shared an experience
Procedure or Surgery (Mastectomy): November 2011: Decided on a Double Mastectomy. Had figured out over the past year that if I did have another occurrence, I would likely have a Mastectomy, and a Double one so that I would reduce the chance of reoccurrence as much as possible. So there really wasn't much of a decision.
Spoke with the surgeon on the phone the evening before and then met with her in her office the next day. The outstanding question was about the oophorectomy. She thought that perhaps I should put it off, but I was certain that I had put it off long enough, and unless she could come up with a good reason why I shouldn't have it done, I wanted to have that done as well. Her only reason was if it would get too complex. I asked her what would make it too complex, and she talked about people who had had cysts and other issues with their ovaries and such over the years. I had never had any of those types of issues, so we decided the risk was minimal.
The surgeon was then wonderful and moved mountains of red tape and paperwork to get appropriate temporary privileges at the same hospital that my ONC/GYN was at, and at the same scheduled time that my oophorectomy was already scheduled for, so that we could do the Mastectomy and oophorectomy as quickly as possible (the Monday before Thanksgiving.... It was really the only way to get the surgery scheduled that quickly.
On Sat, Nov 26, 2011 at 7:32 PM, D wrote:
The week has been progressing, and things have been getting better for the most part. I had a great thanksgiving dinner cooked by my sister C. That night however, we noticed that the left side chest seemed to be more red than the right, and while the nurse had indicated that was good (as that was the side I had two incisions on) and showed blood flow, I started to get concerned. We called the doctor's office the next morning like we were instructed but the voice message I received was their normal in the office voice message (even though we knew no one was working that day) so I just left a message and hoped that the doctor got it. I did this twice..... Then later in the day, after their normal hours, I called back and it was in the out of office mode at that time and so I had a choice for where I could leave a message for the doctor specifically... Well, she called me back very quickly. She apologized a few times about the phone system..... After she took my information, she put me on antibiotics and made an appointment to see her in her office the next morning (Saturday) at 9:30..... Now how many doctors would do that these days? So we met with her this morning and she thinks that the area didn't look as bad as we had described it the night before...... C and I told here that it has gotten better since being on the antibiotics. Anyway, she is pleased with what looks like the amount of oxygen that is getting to the area and is keeping me on the antibiotics since there can be a tendency for infection in situations like this.
I hope all obstacles are cleared up this easily and quickly......
So after the appointment with the doctor, we went shopping to see if I could find some short sleeve shirts that button up the front (cause the hot flashes are really getting to me now.... After the Oophorectomy .....lol. I didn't know that it would get worse than what I already had!!!! LOL)
We also went to breakfast at I-HOP.... I just got up an hour ago from sleeping for 3hours and dozing for 1hour..... Guess I did just a little bit much.....lol
Dmh987 wrote on Petersb4320's wall
Hi, I am new to this site as well. I have gone through two Breast Cancer's and Ovarian Cancer. I have been in a support group for 2 years now. I joined to have a place to Blog my story and to give back and help other's through their Journey. I have been lucky that I am in an area that has a great Cancer Support Center just miles away from my house. I just want to say that you are not alone. There are many women that share that experience of being told that they are so brave and yet are crying on the inside. I have found that as I share my journey with others, I have become stronger on the inside. It is in the shared experience and going through this journey that I think that we end up becomeing what other people see, but really we were that all along, we just didn't feel it that way.
Feel free to read my Journey, I posted many of the emails to my family and friends and while they are more on the lighter side as I became know for finding the humor in the strugles, they have information on my journey. I have not completed my story yet as I just got on the site yesterday, but if you have any questions, just let me know. Just so you know, I am just in monitoring mode at this point for my second breast cancer (had double mastectomy the second time) and will have reconstruction within the next year. Ovarian was stage 1 so that is pretty much done with, and will just do some standard monitoring.
Keep in touch.
Dmh987 shared an experience
Oh No (Cancer is back/Recurred ): Late Oct, early November 2011, I was going to a program on transitioning from treatment to recovery. It had some exercise as a part of that, and I started to have some lypmphedema occurring in my left shoulder. I was also going to physical therapy at the time. I noticed a small pea size lump, and ask the therapist what she thought. The long and the short of it, I called my oncologist about the lymphedema and the lump that I felt. The nurse called back after the weekend and I said that the lump seemed to disappear but the lypmphedema was worse. She and the doctor sent me to see a lymphedema physical therapist specialist. I couldn’t’ get into her for 3 weeks, and when I did the lump was back and she sent me right back to the oncologist doctor, who then sent me to my breast surgeon. I was put on some antibiotics, but they didn’t reduce the size of the lump so, it was biopsied and was found to be positive, and was fully triple negative this time (last time there was just slight estrogen positive). The surgeon thought it was likely a new breast cancer as it was in a totally different area (although in the same breast).
Here is some emails to my family during that time:
On Sun, Nov 20, 2011 at 8:14 PM, D wrote:
Well, This is another update, but isn't good news, but is news that I figured that I would have some day....
I have another occurrence of breast cancer in the left breast (same as last time).... I just didn't think that I would have this news this soon. The breast surgeon indicated that while we will not know for sure either way for sure, she thinks that this may be a new occurrence as this is in a different location.
I am having the surgery tomorrow morning November 21st. After the last year and a half of being in support groups for cancer and BRCA (Hereditary Cancer), I feel that I am in a much better spot to deal with this surgery now.
Below are the details (that have been going to the immediate family this week)..... I just got the diagnosis this past Tuesday....
Sorry for the late update, but it has been a hectic week.... to say the least....lol
Subject: Surgery 11/21/2011
Date: Wed, 9 Nov 2011 22:53:09 -0500
To: Family & Friends
I am going to have my ovaries (and fallopian tubes) removed, an oophorectomy, on November 21st. It is an outpatient procedure with a 2-4 week recovery. It will be done at Good Samaritan Hospital by Dr. B, who did A's surgery. This is just a preventative surgery....
Sent from my iPad
On Thu, Nov 17, 2011 at 7:25 PM, C (sister) wrote:
D asked me to send this update out to siblings.
She met with her surgeon today to discuss options for the lump she found in her breast. She has made the decision to have a double mastectomy with reconstruction surgery to be performed at a later date after her chemo therapy.
Her surgery start time is the same - Monday, November 21, the removal of her ovaries / tubes will begin at 9 am and last approximately 1 hour. Her double mastectomy will begin immediately after that and will last two to three hours. She will be spending Monday night in Good Sam hospital and based on how her surgeon feels she is progressing with drainage / pain level she may go home Tuesday afternoon or if too much drainage / pain she will spend another night in the hospital.
We will send out text messages / phone calls Monday morning to let you know where in the hospital we are and give updates.
If you have any questions please call.
On Fri, Nov 18, 2011 at 12:30 PM, D wrote:
OK, So I talked to the Nurse at the Breast Surgeon's office and Good Sam does the Sentinel Lymph Node injections differently and so the schedule is as follows:
I still have to be there at 6:30am, at 8:00 am, they will do the injections with the dye to start the process for the sentinel lymph node biopsy on both sides.....
They will wait the 3 hrs for the dye to travel before they will let a surgeon start.... So....
at 11:00am Dr B. will start the Oophorectomy
and at Noon, Dr M. will start with the Sentinel Lymph node biopsy, followed by the bi-lateral Mastectomy. (which will last about 3 hrs.) I will still spend the night.
IT WILL BE A LOOOONNNNNGGGG DAY...... SO BRING books to read or cards to play if you are planning to come....LOL.....
(S, C will take me to the hospital if that is OK with you.... you will be able to get more sleep if you want then..... Let us know what you want to do....)