• DonnaJenkins' Avatar

    DonnaJenkins wrote on GregP_WN's wall

    GregP_WN Hi Donna, sorry I'm a little late getting back to you, I traveled across the state today to go to a seminar tomorrow. We have a Gynecology Nurse, @carm maybe that was her? I don't remember an Oncology nurse, but there may be. Try Carm and see if she has what you need, she is great. - See more at: http://www.whatnext.com/home#sthash.VlUyPams.dpuf
    Thanks, Greg. I found her. She gave me an ACS web site about different kind of Tumor Markers. Thanks for always being so responsive. DJ

    1 Comment
    • GregP_WN's Avatar
      GregP_WN

      You're very welcome, let us know anytime you need anything.

      about 3 years ago
  • DonnaJenkins' Avatar

    DonnaJenkins wrote on carm's wall

    I have been looking for you. I, too, have a benign Meningioma. Being followed by a Neurologist. Have you heard of the blood test CEA 125??? Tumor Marker, I assume.

    1 Comment
    • carm's Avatar
      carm

      DonnaJenkins,
      Yoy have two markers mixed together. There is the CEA which is usually for cancers of the gut and the CA125 is for gynecologic cancers. I have attached a link to help you understand markers. I hope this will help you. If you shold require my further assistance, I am here to help. Best of luck to you, Carm RN

      http://www.cancer.org/acs/groups/cid/documents/webcontent/003189-pdf.pdf

      about 3 years ago
  • DonnaJenkins' Avatar

    DonnaJenkins started following

  • DonnaJenkins' Avatar

    DonnaJenkins asked a questionOvarian and Fallopian Tube Cancer

    Blood Tests and Using no Dye for CT Scans

    5 answers
    • derbygirl's Avatar
      derbygirl

      To put in simply, the CEA tests for protein in the blood and gives the doctor a better indication of whether the treatment you are receiving is working and it checks if the cancer has spread, specifically to the colon. The blood work is not the only way to see if the treatment is working or if there is cancer elsewhere, but it gives the doctor a point to start from to make a decision on what other scans to order. It is an indicator but there are many reasons for an elevated level. That's why the doctor's use this as an indicator and not a final determination. This is just one tool in the treatment of cancer that the doctor's use so try not to worry about the results until you have talked to your doctor about follow up tests or changes in your treatment. As far as the contrast dye, it can cause damage to kidneys, especially those that are already weak. Talk to your doctor about whether there is something you can take prior to the scan that can protect your kidneys from the effect of the contrast dye. I hope this helps. Take care.

      about 3 years ago
    • Corky's Avatar
      Corky

      Hi: My name is Corky McLellan and I have had ovarian 3 times now. My most recent diagnosis was in 2009 and I've been living with the cancer ever since. I too have the CA 125 and CT scan regularly. Not sure what the CEA 125 is but I'm going to look it up on-line. The cancer is very stable, but has metastasized to my bladder with a tumor which is inoperable. Chemo has not been started due to the fact that it would be my third time on chemo and the doctor's don't want to start again till the cancer is growing more. It's very confusing I know. I also was diagnosed with "Minimal Change Kidney Disease" (December 2012) which is a vary rare disease when it's comes along with ovarian cancer. Although my kidneys are working OK, I do have some anomalies, like high protein levels showing up in my urine. How odd you too have a situation with your kidneys. What are the doctor's doing to help your kidney problem. The reason you are not getting contract during your CT scans is because that dye could damage your kidneys as it goes through your body. I wrote my journey on this web site a while ago about my cancer and kidney problem. Not sure where those stories are located, but if you could find it, I would be very interested in finding out if your diagnosis was in any way similar to mine. I got really swollen (with the kidney problem) in the beginning and I'm right now on a lot of medication which makes me feel really ill. The doctor's are reducing some of my meds, two of which are steroids. I hope you get this message, as I'm not very familiar with this web site. God Bless, Corky

      about 3 years ago
    • avonlea02's Avatar
      avonlea02

      I would never even try to second guess your doctors, but I know something you may be able to look into.

      I worked for cardiovascular surgeons who did heart transplants, stents, valves, etc. on very sick patients. They would not operate without a CT scan. Some of the patients had dye allergies. There was a medication they could take that would allow them to take the dye without harming the kidneys. It MAY be totally different for you, with chronic renal insufficiency; I don't know.

      But perhaps asking if there is anything you could take to protect your kidneys would be worth asking.

      Please don't give up hope! Keep us posted and God bless you!

      Linda

      about 3 years ago
  • DonnaJenkins' Avatar

    DonnaJenkins wrote on Donna1943's wall

    I have new oncologists: Dr. Hernandez and his P. A., Michelle. Difficult to start with new ones as I have known Dr. Khan for a couple years. Will see them tomorrow for my 3-month F/U that prayerfully will continue to proved that I am in remission.

    1 Comment
    • Donna1943's Avatar
      Donna1943

      Have a new oncologist but he is very popular and not very accessible. My CA 125 are more than 5 times what they were three months ago. Still trying to get ahold of him to move up my 3 month F/U.

      over 2 years ago
  • DonnaJenkins' Avatar

    DonnaJenkins wrote on GregP_WN's wall

    I was linked with an oncological RN. Do you remember who that may be???? Tx.

    1 Comment
    • GregP_WN's Avatar
      GregP_WN

      Hi Donna, sorry I'm a little late getting back to you, I traveled across the state today to go to a seminar tomorrow. We have a Gynecology Nurse, @carm maybe that was her? I don't remember an Oncology nurse, but there may be. Try Carm and see if she has what you need, she is great.

      about 3 years ago