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    donnalawlis asked a questionLeukemia

    I am scheduled for an Autologous Stem Cell Transplant on Sept. 26, 2012. My sister is a half match. Has anyone had experience with this?

    6 answers
    • prettyinpurple's Avatar
      prettyinpurple

      I had an allogeneic (non-related) bone marrow transplant on 4/21/11. Yes, you will be in the hospital for a month (or maybe 5 weeks). I had to have very strong chemotherapy for the first 14 days to kill off any leukemic cells that might still be there, even though my last bone marrow aspiration showed me to be in remission. Then after the chemotherapy is done they will give you the stem cell transplant, and after that you will have to wait for the blood counts to come up, that's why it takes so long. My best advice is to keep yourself healthy before admission, and after admission make sure you do everything they tell you to do, i.e. do the mouth rinses, take all the medicine, etc. The worst part for me was the mucositis I got from the last 2 chemotherapy injections, but I made myself eat anyway, even icecream for breakfast, so that I wouldn't have to have a feeding tube through my nose! That does go away once your counts begin to rise. After you go home, just make sure you always take ALL your medicine, keep yourself safe from sick people, mold, dust, grass, etc. so that you don't get any infections. You have to try to make it through the first 100 critical days without an infection that will put you back in the hospital! Ask me anything else you want to know!

      about 4 years ago
    • LisaLathrop's Avatar
      LisaLathrop

      How did your SCT go? I had an auto BMT and my sister was a perfect 10 match. Very little GVHD with her although I did "inherit" her allergy to amoxicillin (found that out the hard way) and her recessive curly-hair gene (from our Mom...who has since passed of lung cancer so as much as I am struggling with my new "do"...I am reminded of Mom every day). To my knowledge the less of a match, even within family lines, the more GVHD is prevalent. Be PROACTIVE! Be sure to use the mouth rinses 2x daily, and watch closely for rashes. Your counts will be up and down and up and down....but don't let that discourage you. FRESH, NEW, HEALTHY blood does eventually grow in you and it may take some time. Check out my site: www.cancerkaleidoscope.com - my way of giving back. Good luck to you!

      almost 4 years ago
    • LisaLathrop's Avatar
      LisaLathrop

      I had an Allo transplant in Feb. 2009....my sister was a 100% match. At Univ. of NE Med Center, the protocal for Allo transplants is 100 days within a 30 miles radius of the hospital. Even though we had moved to within that range, I spend the majority of my 100 days in the hospital. After just 6 weeks into the initial transplant, my AML came back. I received a 2nd transplant (again from my sister) but only her MATURE white cells this time. That did the trick...and I have been in remission for 4 years now. GVHD was minimal for me....I had a FLT3 marker on my DNA and now take a clinical trial med to block that so in all likelihood the AML won't come back. Yes, I'll probably be on that drug for the rest of my life. Although the GVHD was minimal (a few mild rashes, diahrea - endoscopy to check for GVHD in the colon), I still have some side effects....chronic Bronchitis...I get it about every 3 months and it takes at least 6 weeks for full recovery, shingles (ouch!), knee pain due to infarcts (where lack of oxygen has worn away the bones in my knee - will get that replaced in 1 1/2 years)....but Hey, Life is Good! I'm Alive!! You can do anything and with a sibling match, that's the best option for full recovery and remission. Good luck to you!

      almost 4 years ago
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    donnalawlis shared an experience

    Decision Point

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    donnalawlis shared an experience

    Side Effects (Anemia (low red blood cell counts)): I have had 32 units of blood since March 2012

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    donnalawlis shared an experience

    Drug or Chemo Therapy (Chemotherapy): I had many side effects. My sister gives me IV fluids 3 times a week to help with nausea. I am scheduled for a bone marrow transplant on Sept. 26, 2012

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    donnalawlis shared an experience

    Oh No (Diagnosed): This is my second round. Was diagnosed in 2008 for first time