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    donnatu9122 wrote on GregP_WN's wall

    Thinking of you and Donna. Hoping you both find relief. You mean the world to us all. Much love

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    Question: Being prepared

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    donnatu9122 asked a questionThyroid Cancer

    Being prepared

    6 answers
    • po18guy's Avatar
      po18guy

      I would say that, if you have a belief system, world view, cultural practice or religion, to dive into it. All such systems deal with illness and suffering. All offer varying degrees of comfort and help in preparing for what lies ahead. In my case, my faith prepared me for, and has sustained me through 12 years of constant cancer and transplant rejection issue treatment.

      Apocalyptic rock musician Warren Zevon, after being diagnosed with mesothelioma, gave this simple but sage advice: "Enjoy every sandwich."

      9 months ago
    • donnatu9122's Avatar
      donnatu9122

      I will be meeting with the Pulmonologist for the first time. My Oncologist and Endocrinologist will also be involved. There is no chemotherapy available for the tall cell papilary thyroid cancer. This is why no treatment has been so far. We definitely did internal nuclear treatment that suppressed the growths. Two of the the growths have grown to a size that requires the Pulmonologist..But of course one in each lung.
      Thank you all for your suggestions. I see a counselor once every two weeks. He has been through this with me since the beginning. I really appreciate having this sight available to all of us.

      9 months ago
    • Jayne's Avatar
      Jayne

      I am so sorry to hear that you are having to deal with so much at this difficult time with the virus and all the comes with it. You've gotten some great advice from the "team" here. We all handle coping so differently but for me, I'd probably dive in and do some research because I find that preparing helps me feel more in control. I'm glad you have a solid support system, at home and here online. I've had some experience with lung mets and am happy to share when you get to that point. Hoping for some peace for you.

      9 months ago
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    donnatu9122 asked a questionThyroid Cancer

    Insensitivity

    5 answers
    • GregP_WN's Avatar
      GregP_WN

      I think that some people, in a lot of professions, get to the point where they forget what it's like to be the patient, they forget how to be compassionate, they take us for granted, and in a lot of cases, they are just riding their job out into the sunset.

      Sometimes it takes a good reality check for them to snap back to being the caring doctor that they probably started out to be. The healthcare system we currently have is partly responsible where clinics, doctors, and hospitals are forced to run us through like cattle getting our shots, in order to be profitable.

      I guess the ways to be profitable don't include being empathetic, compassionate, and kind.

      about 1 year ago
    • donnatu9122's Avatar
      donnatu9122

      I will be writing a letter to the Hospital he is affiliated with. This needs to be in their face as an improper way to treat us. Profit is exactly what this is all about.

      about 1 year ago
    • gpgirl70's Avatar
      gpgirl70

      Your PCP is your first line of defense with health concerns. My PCP was the one who ordered all the imaging and biopsies for my cancer diagnosis even though I had a clear mammogram 6 months earlier and a clear mammogram when I went in for breast pain. She then ordered an ultrasound which found the small breast tumor and then an MRI which showed the mass in my lymph nodes and my thyroid cancer. Most breast cancer does not present as pain and swelling. The breast pain did respond to antibiotics but she didn’t give up. I’d be dead now if it wasn’t for her because many doctors would have taken mammogram results and said that it was just an infection. Get a new PCP who listens and explains the situation. Thankfully you got a referral.
      I have lots of skin issues since I finished treatment but my dermo was able to tell me exactly what it was and why there was no medical reason to treat some and why others needed to be removed.

      about 1 year ago
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    Question: Insensitivity