• Donny's Avatar

    Donny wrote on KYF's wall

    Here is the skinny;
    Call/research organizations and cancer centers that specialize in your type of cancer specificities.
    Get Biopsy.
    Test for all gene mutations.
    Get second opinion always! (Use the most experience oncologist with your specific type of cancer.)
    Don’t let them bully you into starting immediately, do your research. (Your cancer did not grow to this level in one day!)
    Hospitals want you to start so you don’t switch hospitals. All hospitals have oncologists, not all are specialists in all cancers!

  • Donny's Avatar

    Donny wrote on Danirobin2018's wall

    Here is the skinny;
    Call/research organizations and cancer centers that specialize in your type of cancer specificities.
    Get Biopsy.
    Test for all gene mutations.
    Get second opinion always! (Use the most experience oncologist with your specific type of cancer.)
    Don’t let them bully you into starting immediately, do your research. (Your cancer did not grow to this level in one day!)
    Hospitals want you to start so you don’t switch hospitals. All hospitals have oncologists, not all are specialists in all cancers!

  • Donny's Avatar

    Donny wrote on ShelleyE's wall

    Did hospital take biopsy and test for gene mutations?

  • Donny's Avatar

    Donny wrote on ShelleyE's wall

    If you are EGFR positive why are you receiving chemo?
    Did you start with Tarceva or Trigriso? Did they not work?
    Did you get second opinion by the most experienced oncologist that specializes in EGFR Lung Cancer?

  • Donny's Avatar

    Donny started following

    User: Charliebill

  • GregP_WN's Avatar

    GregP_WN wrote on Donny's wall

    Hello and welcome, we are happy to have you with us. Please feel free to join in the conversations. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started with the help you need right now.

    https://www.whatnext.com/conditions/cancer/lung-cancer

    There are also subtypes listed on this page to narrow down the type of cancer to match your dx. Also, if you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the database to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall.

    Thanks for being with us and let me know if I can help you find any information on the site.

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    GregP 3X Survivor
    WhatNext Community Mgr
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