• dora201077's Avatar

    dora201077 shared an experience

    Celebration (Cancer is shrinking): we finally had a ct scan after 8 weeks of treatment, and the images show that the lung nodules and the other nodules decreased a few mm...the doc said that this was prove that zelboraf pills really worked...who had experience with zelboraf pills can tell me if at this ratio (lung nodules from 7 to 5 mm, other from 17 to 14 mm) wecan hope for more.? if he continues taking the pills as the doc said...thanks a lot

    1 Comment
    • Ioana's Avatar
      Ioana

      Dora, I am the daughter of a melanoma patient (my mum-55 years old). She just started Zelboraf, with magnificent results in only 7 days. Her overall health status has improved significantly. CAn u please give me your email address so that we can speak in our mother tongue language? Tell me what are u thinking to do with Zelboraf? It's bloody expensive!
      Ioana ( Te astept sa vorbim pe mail- nu stiu ce optiuni avem sa beneficiem de gratuitate sau macar un discount mai considerabil).

      about 3 years ago
  • dora201077's Avatar

    dora201077 asked a questionSkin Cancer - Melanoma

    "early" stage 4

    • Russ' Avatar
      Russ

      Hi Dora, I just finished reading your husband's cancer journey, and the fact that you have been with him every step of the way. I commend you for quitting work and staying home with him. You may want to, at some point, rethink that decision only from the standpoint that it will occupy your mind, and will help pass the time of day. This is depending on how much your husband needs someone with him all day long, and also your type of work. In any case I want to welcome you to WhatNext...it is a great site with great people. I am not a melanoma-skin cancer survivor, but when it comes to supporting individuals with cancer it doesn't matter what kind of cancer. I am 69 and nearly a 13yr stage IV pancreatic cancer survivor. It has been a long journey but one that I do not regret. I am at peace with what happened to me in the past, and I am at peace with what will happen to me in the future. To answer your question about what else you can do for your husband...there is nothing more that you can do. Just continue supporting him, and try to comfort him and support his decisions on further treatment. Is he presently receiving treatments? Are clinical trials available? Check with your husband's oncologist. I have never heard of leaking lymph nodes...that is a new one for me. What is his prognosis? If you don't mind me asking...how old is he? Is it just the 2 of you, or do you have children? I know that these questions have nothing to do with your question, but I like to know as much as possible about the person or persons that I am offering support to. The best that I can offer you at this point is moral support. Take care of yourself so that you are better able to take care of your husband. Believe me when I tell you that he is worried about you. It is those of us who have life threatening diseases who are worried about our family more than ourselves. I wish I could have been of more help to you and your husband. God Bless you guys.
      My best to both of you,
      Russ

      over 3 years ago
    • Clyde's Avatar
      Clyde

      I'm going to agree with Russ about rethinking your quitting your job. One of the most important factors in a cancer patient's survival is feeling "normal." You continuing to work, having something to talk about other than the cancer, something happening in your life that isn't cancer oriented will help him as much as any medicine. It will be good for you too. And it will be good for him to be as independent as possible for as long as possible. And it will be good for both of you to have a little space.

      Also, there is no way to know for sure that it will get worse. And even then, there isn't a definite time line for when "worse" will happen if it does. I would think keeping things as normal and routine as possible for as long as possible would be a good plan.

      Cancer is very emotional for everyone. Don't let the emotion get the best of you.

      over 3 years ago
    • callbuz's Avatar
      callbuz

      I am also a stage 4 Melanoma survivor. I had 2 nodules in my right lung which was removed with steriotactic radiation (gamma knife). Surgery is still the gold standard. Find an oncologist who specializes in Melanoma. He may recommend testing for b-raff gene mutation where several treatments have been in trial for some time.

      over 3 years ago
  • dora201077's Avatar

    dora201077 wrote on carm's wall

    thanks, tried that site but for zelboraf the patients must be US residents...which we are not, we live in Romania...

  • dora201077's Avatar

    dora201077 shared an experience

    Oh No: PET CT revealed small 4-7 mm lung nodules and other 4 nodules, only one of them being surgically removed next week. So it's stage 4 melanoma. can't believe it! they could be side effects of 2 1/2 months of interpheron but it's a long shot...

  • dora201077's Avatar

    dora201077 wrote on CAS1's wall

    I haven't tried yet..thanks for the tips...I wil try after the surgery to look for any possibility to get these meds.

  • dora201077's Avatar

    dora201077 wrote on CAS1's wall

    thanks for your answer. good luck to you

    1 Comment
    • CAS1's Avatar
      CAS1

      You know you can contact some of the US big name cancer hospitals and see if they will take you as a humanitarian case..They do do this often for people from other countries. Also are their any clinical trials in Romania?
      Can you go to a next door neighbor country and get the medicine?

      over 3 years ago