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    dora201077 wrote on carm's wall

    thanks, tried that site but for zelboraf the patients must be US residents...which we are not, we live in Romania...

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    dora201077 wrote on CAS1's wall

    I haven't tried yet..thanks for the tips...I wil try after the surgery to look for any possibility to get these meds.

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    dora201077 wrote on CAS1's wall

    thanks for your answer. good luck to you

    1 Comment
    • CAS1's Avatar
      CAS1

      You know you can contact some of the US big name cancer hospitals and see if they will take you as a humanitarian case..They do do this often for people from other countries. Also are their any clinical trials in Romania?
      Can you go to a next door neighbor country and get the medicine?

      about 7 years ago
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    dora201077 started following

    User: CAS1

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    dora201077 wrote on kage's wall

    After the first 3 injections, given in the hospital under doctors supervision, now I give him the injections 2 pens of 18 000 000 each in the sholder...I can't wait to get through 2 more weeks...and see what's next...We still have to do tests and hope that there will be no recurrences under treatment.

    4 Comments
    • dora201077's Avatar
      dora201077

      how much did you take first and now?

      over 7 years ago
    • kage's Avatar
      kage

      I'm not sure how much the first month was,,,,but it was an iv bag,,,,,along with a bag of benadryl, now I only take close to 3cc 3 times a week

      over 7 years ago
    • dora201077's Avatar
      dora201077

      I see.. We hope that cough will go away . We try to hang in. I wish you good luck and let me know about you from time to time. Dora

      about 7 years ago
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    dora201077 wrote on kage's wall

    Thanks for asking about us...today we have 2 full weeks of interferon. It's hard. the worst effect is cough. the surgery is still leaking, so there's a discomfort, he's not depresive, yet. We go to the doc on monday to have the blood tests done and we'll talk about the cough...And how are you ?