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    dorothyoz asked a questionBreast Cancer


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    • SusanK's Avatar

      Hi. I think oncologists differ in their approaches to this. Mine wants a yearly chest Xray and complete blood work every six months. No other scans unless symptoms warrant it. I know you feel a little "naked" against TNBC; other cancers require some sort of oral medication for five years. I am starting to feel a little more comfortable with my prognosis; I recently went over my pathology reports again (no lymph node involvement, wide margins, bi-lateral mastectomy, six rounds of chemo) and feel reassured that I did all I could do. I will continue to be vigilant. Just had brain MRI because of recurring headaches (dr. wanted to rule out any cancer) and had routine colonoscopy (five year recall because of family history). Both tests were negative, my latest blood work and chest xray were fine...I am starting to believe I can live many healthy and productive years henceforward. My doctor doesn't use the term "cancer free" and I would certainly feel better if he did. But I am starting to enjoy a "normal" life. Please try to worry less. We will deal with problems should they arise down the road, but for now, just be happy.

      almost 9 years ago
    • debco148's Avatar

      This is the norm for these stages of Breast Cancer. If determined it was not in bones, lung, etc. after chemo and all there would be no purpose to exposing you to more radiation by doing scans, injecting dyes, etc. Blood test and physical exams every 3 months, mammogram (if any breast tissue left), and or MRI. I did complain of soreness in left breast (had mastectomy there) and Oncologist examined and thought it was just scar tissue, but she sent me to the surgeon and to get an ultrasound just to be sure. All was clear! But, you need to point out any symptoms that bother you so you can be checked out. And that is it! The most important thing to do now is go live your life!

      almost 9 years ago
    • leepenn's Avatar

      hey there - so i'm similar to you, except that i was stage ii. i had chemo and then bilateral mastectomy. my team sees me every 3-4 months and performs a physical exam and asks me questions about pain. if i present a new symptom of pain that could be consistent with recurrence or metastases, then, a scan will be ordered up. otherwise, that's it. there's no suitable blood work for triple negative.

      at first, i felt like i was floating in scary-ville. but, i've come to very clearly realize that this is way way better. instead, i just pay attention and write down pain if i have it. if it doesn't resolve or is particularly worrisome, i call in. the general rule is two weeks, unless it's something very out of the ordinary...

      one time, i had rib pain, and i was really scared. i called, and my doc had me come in that afternoon. turned out to be an overuse injury because i had gone for some very very long bike rides ... without the fitness really to back those up, if you know what i mean. i was just so excited to be out on my bike - i totally overdid it. this was like 2 months after my last treatment. anyway, to make it short... he did a physical exam and felt confident that i was looking at an overuse injury. he ordered a chest xray, just in case. and that came back normal.

      so, that's it. take a deep breath... and try to relax. it takes a while to get used to, but you will get used to it.

      hugs to you.
      ps - congratulations on finishing treatment!!!!

      almost 9 years ago
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    Procedure or Surgery (Double Mastectomy)

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