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    DoubleJ wrote on Beverly's wall

    Hi Beverly, my 5th treatment was the usual side effects, doing good overall. One more to go, and then will have bone marrow biopsy in march to see if still in bone marrow. After that, going to switch to Dr I went to for a 2nd opinion, who wants to watch and wait.

    How are you feeling, and how is your progress coming along?

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    DoubleJ wrote on cherylintampa's wall

    Hi cherylintampa, I have NHL small lymphocytic lymphoma, stage IV. I just finished my 5th chemo and have 1more to go. The dr I have now wanted to do the 6 treatments, and then 2 yrs of maintenance chemo every 8 weeks. I had went for a 2nd opinion, and she is more watch and wait. She said she doesn't know that she would of even started me on treatments yet. She said go ahead with the 6, but don't do the 2 yrs more. After I finish my last treatment, I'm going to go to her going forward,and she is going to monitor every 3 mos.

    How did they find the cancer is back?

    1 Comment
    • diannemonroe's Avatar
      diannemonroe

      They knew the cancer was back when the white cell count went from 7,000 to 80,000 in less than 8 months. My platelets started dropping, and I didn't pay attention to that. I was always more concerned with the white cell count. Watch those platelets! I ended up with a transfusion when mine dropped to 20,000.

      almost 4 years ago
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    DoubleJ wrote on Beverly's wall

    Hi Beverly, that is great news that your tumor has shrunk quite a bit! so do they think you might be done with treatments after 2 more? I have 2 treatments left, 1 on the 30th and the 2nd 3 weeks after that. Then my dr is going to do a bone marrow biopsy to see if cancer is still in bone marrow. After each treatment I seem to be a little more fatigued for a longer period of time. Once in a while I have a day where I feel I have as much energy as I use to. Today is a day I feel pretty good. Don't need a nap after work today.

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    DoubleJ wrote on Beverly's wall

    Hi Bev, sorry I haven't responded sooner. I haven't logged on in a while. My name is Jodi. In answer to your question, I do find myself wondering of all the people I see out on public, who has or has had cancer. My biggest complaint is fatigue, which after reading what other people are going through, really isn't much to complain about. How are you feeling? We're you able to enjoy your holidays? For my last treatment, my dr had me spread out the steroids I take after treatment over 8 days, instead of 4, so I was ok for christmas. I go for my next chemo next Monday.

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    DoubleJ wrote on Bald_Bob's wall

    Hi Bob, I have CLL SLL (chronic lymphocytic leukemia) (small lymphocytic lymphoma). Mine is stage IV because it is in 4 different places and in my bone marrow. I am having 6 chemo treatments. Then my dr wanted to do 2 years of treatment every 8 weeks as maintenance. I went for a 2nd opinion, and she said the 2 years is not necessary at this point. She said it will mostly treat the symptoms, and that I do not need that at this point, but may need it some time later. No radiation, and no other surgery needed. Like you my chemo is once every 3 weeks , followed by the nulesta shot and steroids. I am doing short term disability for a week with each treatment, and then working in between. People are surprised I can work in between, but it does help. The chemo I get is called CVP. I was lucky not to lose my hair, and I have had the constipation (which I have found just drinking a big glass of prune juice every morning helps and have heartburn. Some times I feel guilty because overall, my biggest complaint is fatigue. I haven't had the bone pain. Even though I'm tired, I still try to workout in between when I can. It makes me feel better. I take a lot of naps on the weekend, and when I work, I try to sleep on my lunch and lay down when I get home. I think it is great that they caught yours early!