• Drstevenpavia's Avatar

    Drstevenpavia shared an experience

    Decision Point (Afterc2 cycles, my markers are normal and bloodwork is normal. They could elect to do surgery on my testicle but they want to continue with 2 more cycles of chemo ): My veins cannot take any more needles... they are collapsed. I am electing to forgoe further chemo right now and do natural preventative/ treatments.

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    • dougbank's Avatar
      dougbank

      There's not much information here, but it sounds like you are saying that your cancer was diagnosed with seminoma in your inguinal nodes and they started with chemo without removing the testicle. You have had two cycles of chemo and want to stop.

      Seminoma is normally very treatable, but it can still kill you. Having it show up in the inguinal nodes is not typical, and I do not think it is a good idea to stop chemo. You can use markers to decide on treatment, but you cannot use them to decide when to stop. You should have 3xBEP or 4xEP. 2 cycles are likely to leave residual cancer that will eventually cause real trouble in the future. I understand that the chemo is bad. Ask the doctors to consult with experts Ike Einhorn at IU to see what they can do to reduce side effects and completely cure you. The chemo is typically not this bad, so I question whether your doctors are doing everything they can (correctly) to treat you properly.

      There are no natural treatments that kill this cancer.

      [email redacted]
      TCRC

      7 months ago
  • Drstevenpavia's Avatar

    Drstevenpavia shared an experience

    Side Effects: Dehydrated- susceptible to cold, to people. Nausea all the time, metallic and painful mouth and gums. Hair fell out. Listlessness

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    Drstevenpavia shared an experience

    Drug or Chemo Therapy (Chemotherapy): 5 days of chemo in a row. Made me sicker than XXX. Took 10 days afterward to start to recover.

  • Drstevenpavia's Avatar

    Drstevenpavia shared an experience

    Oh No: Diagnosed w seminoma (inguinal lymph node

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