• Ejourneys' Avatar
  • Ejourneys' Avatar

    Ejourneys asked a questionBreast Cancer

    Call to action for lung cancer patients: Senate excludes Lung Cancer Research Program from FY2020 Defense Appropriations Bill

    6 answers
    • Carool's Avatar
      Carool

      Thank you, Ejourney. Why am I not surprised by what the Senate is doing to hurt people? A bigger bunch of psychopaths in one place can’t be found, even in a prison. I’ll definitely write to my representatives, though I’m in NY so have Democratic reps who won’t vote for this bill.

      about 1 month ago
    • Skyemberr's Avatar
      Skyemberr

      That lung cancer is important for all of us. A lot of progress has been made towards curing other cancers based off of progress we have made with lung cancer drugs. I hope enough people scream loud enough for it to go back to being funded! You'd think it would get attention with us being at the start of October when people seem to be more aware of cancer issues.

      about 1 month ago
    • KB2013's Avatar
      KB2013

      Insane! the no. 1 killer of women, the least research dollars!

      about 1 month ago
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    Lorie wrote on Ejourneys's wall

    Just sending a cyber hug. Lorie

    1 Comment
    • Ejourneys' Avatar
      Ejourneys

      Thanks, Lorie -- cyber hug back at'cha! Hope all is well.

      2 months ago
  • julie127's Avatar

    julie127 wrote on Ejourneys's wall

    hi

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    Ejourneys asked a questionBreast Cancer

    Two cancer surveys: (1) Endocrine therapy side effects and (2) Chemo and hiccups

    9 answers
    • Ejourneys' Avatar
      Ejourneys

      Thanks, everyone! I'm fine, just have a lot going on here. Highlights:

      1. Was taken off anastrozole early (after 3-1/2 years, rather than 5) after a severe vertigo event that left me with a headache for a solid week. Head CT and check with ENT confirmed my suspicion that this was yet another SE from the med. Oncologist and I agreed enough was enough. A year later my bone scan shows improvement in my bone density (YAY!), my tenosynovitis is gone (YAY!) and my carpal tunnel syndrome has reverted back to pre-anastrozole baseline (YAY!). My post-chemo garden-variety vertigo continues, but I'll take what I can get. :-)

      2. I'm now part of a great team that's revamping my radiation center's website, plus I do additional writing for the center. I love the gig, and the people there are like family. I also continue to co-facilitate the caregiver support group there.

      3. Caregiving continues to ramp up as my partner continues to lose mobility. She's finally agreed to our taking the transport chair with us, though she's still resistant to applying for a disabled parking card. One step (or wheel) at a time.

      4. I continue to call my legislators and be an engaged citizen.

      Best wishes to all! Keep on keepin' on.

      5 months ago
    • LiveWithCancer's Avatar
      LiveWithCancer

      Hi @Ejourneys! Just didn't want to let the opportunity pass to say it is good to see your name here! Thanks for the update ... sounds mostly good except for the declining condition of your partner.

      5 months ago
    • Bug's Avatar
      Bug

      Hi, Ejourneys! It's nice to hear from you.

      Gabba, it's nice to hear from you, too.

      5 months ago
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