• Eliron's Avatar

    Eliron posted an update

    What to do first - Ommaya Reservoir or Systemic Chemo?

    After consulting 3 oncologists, here is where we stand: Several Dr's suggested Systemic Chemo - then wait and see. However, the most likeable and highest ranked Dr. says start with Ommaya Reservoir and then introduce Systemic Chemo. I believe his suggestion to start with the brain/spine has to do with his concern with the lesions in her brain (I assume because the radiation did not get kill them, but merely shrunk them, and those in her spine (which did not go through radiation) and the fact that she has more free-floating cancer in her CSF. The OR, however, seems like a huge intervention and my loved one feels like starting with a better known/accepted methodology of Systemic Chemo. Would love to hear from people who had to go consider these choices, what you did and why. THANKS!

    Her Diagnosis: Stage IV Lung Adenocarcinoma of the lung, with Leptomeningeal Carcinimatosis. Prognosis: 6 months. Treatment to-date: Radiation - concurrent Whole Brain (16 times) and Tail Bone spot (10 times)

    1 Comment
    • GregP_WN's Avatar
      GregP_WN

      Hello, and sorry no one has seen this here. If you will post this as a question in the questions tab lots of people will see it and you will get some help on it.

      about 4 years ago
  • Eliron's Avatar

    Eliron wrote on DaveWaz's wall

    Given your loved ones diagnosis, I'm wondering if along the way you were s/he was offered an Ommaya Reservoir and what you decided and why? Thanks.

  • Eliron's Avatar

    Eliron wrote on DaveWaz's wall

    Thanks. Good to know there is somewhere to turn and ask.

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    Eliron started following

    User: DaveWaz

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    Eliron shared an experience

    Decision Point (What to do first - Ommaya Reservoir or Systemic Chemo?)

  • Eliron's Avatar

    Eliron shared an experience

    Radiation (Whole Brain (16 treatments) and Tail Bone spot (10 treatments))