• ElissaK's Avatar

    ElissaK asked a questionBreast Cancer

    Breast Cancer Surveys

    8 answers
    • Vivbob's Avatar
      Vivbob

      Send me the Survey Information. Perhaps I would qualify as I have 2 different cancers.

      about 5 years ago
    • Skyemberr's Avatar
      Skyemberr

      Thanks for the specific info @GregP_WN . I wasn't sure exactly how that worked, just that it was approved by whatnext.

      about 5 years ago
    • ElissaK's Avatar
      ElissaK

      Thank you to all who took the time to respond to my question.

      about 5 years ago
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    ElissaK wrote on Malificentdee's wall

    Hello Maliicentdee - I was diagnosed with ductal carcinoma in situ stage 0 in 2003 and my dx in April of 2014 was metastatic (stage iv) breast cancer Her2 positive, hormone receptor negative. I have extensive mets to the bone. Unfortunately 30% of those diagnosed with early stage breast cancer will go on to develop stage iv. You are not alone.

    For me after my stage iv diagnosis, it was difficult for me to participate in support groups that were mostly or entirely filled with those who are earlier stage. I was afraid if I said too much I would scare those who were celebrating being "survivors" and thinking they "beat cancer". I felt they would think that I must have done something wrong to have graduated to stage iv. I didn't. Also, I wasn't feeling very "pink". ;)

    I've found a few closed groups on Facebook exclusively for those of us with MBC where I don't feel inhibited from speaking my mind and sharing my journey with those who understand. If you haven't already, here's a few groups you might want to check out. -

    The Closed Metastatic (Advanced) Breast Cancer Support Group
    and Thriving with advanced metastatic stage 4 breast cancer.

    1 Comment
    • TeacherTracy's Avatar
      TeacherTracy

      I am sorry that your support group experience has not been very positive. I love my group. A lot has to do with the facilitator, but also almost all of the women in my group are Stage IV. The hardest part for me is that many of my friends in group have passed. I just take it day by day. Living with stage IV has impacted my life, but I want whatever time I have left to be spent living well.

      about 5 years ago
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    User: marcie311

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    ElissaK shared an experience

    Other Care (Hospitalization)

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    ElissaK shared an experience

    Side Effects (Blood sugar, high (diabetes))