• Ellie's Avatar

    Ellie wrote on razewalk's wall

    Thank you so much for your answer. The link is extremely helpful. I wish you well with your journey and appreciate your kindness. Ellie

    1 Comment
    • razewalk's Avatar
      razewalk

      You are more than welcome Ellie. My daughter went through a BMT just about one year ago (She was 26 at the time). We celebrate her "new birthday" on February 1st. It's a long road, to be certain, so take along your friends and family for support and remember that each day is a new day. Even though we felt "stuck in time" at certain points, we're absolutely amazed that it's been a year and that it flew right by! I wish you well also!

      over 8 years ago
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    Ellie asked a questionLeukemia

    Amwaiting to see if I need a bone marrow transplant. If I do, what is the next step?

    • razewalk's Avatar
      razewalk

      Have they indicated whether or not you would get an "auto" transplant (your own, altered/prepped blood cells) or an "allo" transplant (from a donor's cells)? If it is an allo transplant, it is best if you are in remission prior to transplant. They will search for a donor. Best case scenario is a sibling donor (your siblings would get their blood tested), but they do prefer to use younger donors (45 and under). That search for an unrelated donor can take up to 6 weeks. Your transplant doctor would also need to decide if you get a "mini-transplant" or a regular transplant. That indicates whether or not, and to what extent, you would go through conditioning of heavy duty chemo and full body radiation in the days immediately before transplant takes place. This wipes out the immune system and (hopefully) kills all leukemia cells so the new cells can take up residence and establish themselves. I would encourage you to read the "Patent" portion of Be The Match web site: http://bethematch.org/

      over 8 years ago
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  • Ellie's Avatar

    Ellie asked a questionLeukemia

    AML and depression

    4 answers
    • lilymadeline's Avatar
      lilymadeline

      Exercise is a wonderful suggestion, it has helped me tremendously and I am no longer on any anti depressants...I also go to a support group once a week, and I see a therapist almost weekly and my psychiatrist once or twice a month! that probably sounds like too much but I am taking advantage of all available resources because I am still in treatment. Check with your hospital social worker hopefully , look for support groups and hopefully you are near a cancer support community of some sort...something like the Benjamin center or WeSparks in California, or Gilda's Club which is the East coast...the cancer support centers always have free exercise classes such as Zumba, Yoga, Tai Chi....they should have something that works for you...even a knitting or quilting class could be a lot of fun. And they may have free therapy sessions available as well. This WhatNext site is wonderful, but it is much better to see people in person and also to take real exercise classes with other cancer survivors. It really helps, believe me. And stay away from sugar, it is a natural depressant and it also is unhealthy because cancer seems to feed off of it. Good luck and blessings! xoxoxoxoxo

      over 8 years ago
    • Peroll's Avatar
      Peroll

      Ellie, chemo affects the seretonin levels in the brain that cause depression and it is quite likely that it caused changes that you are experiencing now. Since this can take several weeks to occur it can be difficult to connect to a direct cause. The good news is that there are several anti depressants available. Please see the Dr. that is over seeing your depression meds as soon as possible to get them adjusted and be patient as it can take a couple of weeks for the changes to take full effect. Good luck!!!!!!

      over 8 years ago
    • 4ellieluv2's Avatar
      4ellieluv2

      exercise a good idea !! a good long walk in nature like a wooded area or if you can a walk at the beach by the ocean is great but you need to do it daily some days you will walk a fair distance and other days when your energy level is not good you will walk a shorter distance it doesn't matter the distance as long as you get out regularly…Yoga for beginners is also very healing there are simple poses that one can do plus the breathing exercises are great

      over 8 years ago
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    Ellie started following

    Question: AML and depression

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    Ellie shared an experience

    Side Effects (Low white blood cell counts (neutropenia))