• Emmitt915's Avatar

    Emmitt915 asked a questionMultiple Myeloma

    Prepariing for kyprolis infusion

    4 answers
    • Judyinthesouth's Avatar
      Judyinthesouth

      I always ask for a room with a tv, so I can enjoy that while I am there. They give me a soda, and I usually take some crackers. Sometimes if I am very tired, I actually take a nap. Everyone there is so nice and it is a new facility, so I say this is my "social outing". I usually go on Thursdays and Fridays for several hours.

      10 days ago
    • Trooper's Avatar
      Trooper

      I didn't do anything except bring a book. My infusions, including kyprolis, seldom lasted more than an hour. It's boring but no big deal. Good luck

      9 days ago
    • annetteOR's Avatar
      annetteOR

      Hello ~ I haven't specifically had a Krypolis infusion, so I've no idea what to expect in terms of reactions, but I can tell you what I used to take to the infusion room. My standbys were always my lower back pillow, a bottle of water, a book, and my phone or my iPad (both had music and meditations on them) with earbuds. When I got transfusions, which took 5-6 hours, I added yarn and once I took my thank you notes to write while there. While I expect your hubby doesn't knit, I throw that out there in case there's anything portable he does do with his hands. I rarely had nausea until the chemo given with my SCT, but you might want to add some kind of candied ginger or ginger chews just in case.

      Naps were always good too, and yes to SandiA about the warm blankets if he's feeling like resting. And it sounds funny to some, but I really get what you mean, Judyinthsouth, about how a great care team can make it feel like a 'social outing.' Also, since it's his first treatment he may feel fine and if you plan to stay with him through the infusion and you play cards together, maybe throw a deck into the bag too.

      My infusion center also allowed visitors and a couple of times friends came to hang out with me for a bit. Lucky hubby having you to think about these things for him! Best of luck!

      6 days ago
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    GregP_WN wrote on Emmitt915's wall

    Hello and welcome, we are happy to have you with us. Please feel free to join in the conversations. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started on the help you need right now.

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