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    Question: Side effects

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    emtp12 asked a questionColorectal (Colon) Cancer

    Side effects

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      emtp12

      Thanks all for your responses, I start my chemo on 11/21 and am a bit aprehensive. I know God will take care of me that is not in doubt, however, this is another unkown to walk into. For a former cop and paramedic firefighter, it ought to be old hat, yet holds a certain amount of terror for me, as I am on the receiving end as opposed to the "rescuer".

      about 5 years ago
    • abrub's Avatar
      abrub

      Just a note of encouragement. Monday will be very scary for you. I know I sat there in tears as I awaited my first chemo. However, the anticipation is worse than the reality (tho the reality is no fun either).

      Ask questions, ask if they can numb you before the IV or port access. (If you have a port, request Emla Cream for subsequent chemos) and know that lots of us have been there before you, and been just as scared.

      Allow yourself recovery time, time to sleep, and accept that the side effects are part of the package you need to beat this cancer. Wishing you well,
      Alice

      about 5 years ago
    • IKickedIt's Avatar
      IKickedIt

      Another note of encouragement for you. I finished my chemo at the end of October (12 rounds of Folfox) and just received my "cancer-free" diagnosis from my oncologist this past week!

      I kept a journal to remember the side effects and to see if I could prepare myself for them. For the most part, the side effects, although they got a bit more severe (or maybe I should say intense) each round, the were the same for me every round. For example, I would get very, very constipated during and immediately after my chemo so I would know to try and counter-balance that during those first few days. But then on about the 5th or 6th day, it went to the other extreme and I could barely leave the house. I would know to lay-off the fiber in preparation for those days.

      The oxaliplatin is the gift that keeps on giving. Be honest with your oncologist about the neuropathy. I was fine for the first 6 or 7 round rounds with the neuropathy wearing off, but by the 8th round, it had gotten quite severe. By the 9th round, it wasn't resolving and my dr. took me off it fearing permanent damage. I was surprised that it kept on getting worse, but apparently that is normal. The neuropathy continued to worsen until about a month ago and now I can feel most of hands, can hold a pen again and am not dropping things as much. My feet are also starting to improve.

      Hope you are faring well, staying positive and taking care of yourself. Good luck!

      almost 5 years ago
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    emtp12 shared an experience

    Decision Point: As I mentioned in another post, shopping around, is a good option, 2nd and 3rd opinions can be invaluable. I had a horrid experience with the local cance center, with the exception of the conversation with the oncologist who was leaving in 2 weeks. He informed me of the results of the testing on the tissue removed during my surgery and told me for the first time that this was a stage IV cancer I was dealing with and the treatment options. He told me about the shortage of chemo nationwide, and of the probable availablity in larger cities. I opted for Siteman Cancer Center in St Louis MO, which is about 2 hours away. My wife and I are not relishing the drive especially with winter weather coming on. We decided to check with a somewhat smaller cancer center about 20 minutes away, and found not only did they not have a chemo shortage, but would gladly follow what Sitemans treatment regiment was. What a gift from God this was. Praise to Him who is mighty to save.

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    Decision Point: My faith lies in God, and all glory goes to Him. Beyond that confusion rules the day. My life has no normal, and as of right now bravado is the expected role. My wife is wonderful, but full of uncertainty and rightfully so. The kids are mostly silent so far, however the fiasco with the local cancer center was just today. So it is a 100 mile drive to a larger treatment center.

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    emtp12 shared an experience

    Oh No (Diagnosed): A chance encounter with an unrelated problem lead to the discovery of a mass in my colon, which lead to the colonoscopy and eventually to surgery where it was learned that the cancer had metasticized to lymph nodes and abdominal lining. We are trying to find a fit with an oncologist. The local cancer center was a disaster.

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    User: GregP_WN