• Erika's Avatar

    Erika asked a questionBreast Cancer

    Chemo or no chemo??

    5 answers
    • Clyde's Avatar
      Clyde

      I chose not to do chemo for my cancer (stage III melanoma) because it held little hope of being effective IF the cancer had spread and was useless, but debilitating if it hadn't. But breast cancer is a different dog fight. Get a second opinion. If the odds of success with chemo are good, I would go for it. Since surgery was performed without an onc consult (if I'm reading this right), I would def get another opinion at a different center. I understand the feeling of responsibility. Its valid and real. But longevity must not be left to chance if the odds are with treatment.

      over 4 years ago
    • leepenn's Avatar
      leepenn

      There is not enough info for me to even begin to say something about what "i would do".... Do you know anything about the type of cancer? Er / Pr positive? Her2 positive? If she had an Er/Pr positive tumor, then an oncotype score would help with this decision. If she had a Her2 positive tumore, then that information would be a big player in making a decision about chemo.

      Everyone is different with side effect. In general, staying active helps minimize side effects, but it is true that she'll be more tired and feel kind of cruddy through much of it. However, the good days do out weigh the bad days...

      Lastly, a second opinion is never a bad thing (well - almost never). So, having another expert look at the data about her tumor is an excellent suggestion.

      I'm so sorry she has to make this decision. It sucks.

      over 4 years ago
    • Nellie's Avatar
      Nellie

      That was my original plan also surgery and radiation. The oncologist appointment was after surgery a week later and he highly suggested chemo. My tumor was 2mm, all margins clear and no cancer in lymph nodes. I DID NOT want to do chemo either, but I did 4 rounds, lost my hair, 6 weeks of radiation and now tamoxifen. Side effects were not as bad as people think especially being told you have cancer and she sounds younger than I. Onco DX score was 19.

      over 4 years ago
  • Erika's Avatar

    Erika started following

    User: GregP_WN

  • Erika's Avatar

    Erika asked a questionBreast Cancer

    My sister was diagnosed with HER2 breast cancer last week after a biopsy. What next??

    18 answers
    • KimG's Avatar
      KimG

      Wow you are very close to me! I grew up in Glendale Hts. and now live in Lake Villa.(northern IL)I can only tell you what I did and I saw my surgeon that I think came from the mammo place. First she or he takes a biopsy(ouch!)so be prepared. Then depending on that you decide on your treatment. You go with whatever you head tells you to. I just had a lumpectomy, then chemo(which is when I found my oncologist),then radiation, then oral meds for 5 years. Some women elect to have a mastectomy first round so they don't have to deal with the possibility of another occurrence even if stage 1. If your cancer is malignant and depending on the stage and the grade that may help you to decide, and whether the lymph nodes have become involved. They usually find out about the lymph nodes during surgery. I was stage 1(a lump about the size of a marble or grape)but a grade 3, which is a most aggressive. I figured it was stage 1 and that it wasn't necessary to remove the breast or both, then do reconstructive surgery. I figured I was relatively young and didn't have time for all that when maybe it wouldn't be back for quite a while. I still had to raise my 11 year old son so I wanted to get back on my feet ASAP. Turns out, for me anyway, that there were many issues that I never thought of came up like emotions, the kinda fog when trying to start a new job or going back to your regular job, menopause, depression ect. it was just really hard for me over these past few years. The best advise I can give your sister is take the time to recover, don't rush it-I went back to work too soon and that caused a lot of other problems. Also the only ones who truly understand what your sister is going through is people who have gone through it. So staying at this site is another wise decision already. At the time my oncologist kinda made the decision based on the surgery, my positives and negatives, your percentages, age, ect, . I trusted his decision and all I knew was if I woke up with drainage lines that wasn't as good. It probably would have made the difference in the treatment and if the lymph nodes are involved it's easier to spread. I was 49 when diagnosed and 52 now. I'm still struggling now because I'm again unemployed and had to file bankruptcy. I say it's because I rushed going back to work when I was so emotional and still getting my radiation. I would stop quick on the way to work, get radiation, then continue on to work which was a new job-so that didn't help either. Everyone's case is a little different but I hope some of this helps and prepares your sister for a not as easy as she thinks recovery. Please just be there for her and listen really listen not trying to push your views onto her. All my best to your sister and you. Praying together to God too. I don't think your sister needs to be more confused with a 3rd doc in the picture, but maybe she's looking for the tie breaker. At least she's on the right track about the oncologist. I'm positive she'll do just fine
      because she's made some good decisions already and has a sister like you! Take care, kimg

      over 4 years ago
    • mrsstevie's Avatar
      mrsstevie

      Erika, it's been awhile since I read this and you posted; but hope your sister has seen an oncologist. I'm also Her2 and also live in Glen Ellyn, I would be more than willing to answer any questions. I've had lumpectomy, mastectomy, chemo and am now ready to finish my last infusion of Herceptin. It's been a long year but your sister can do it. Thoughts and prayers for her.

      over 4 years ago
    • Lindy's Avatar
      Lindy

      Oncologist first, become an her2 expert as you traverse this new journey. So much happening now with great promise particularly for her2. I wish you every good and appropriate decision.

      over 4 years ago
  • Erika's Avatar
  • Erika's Avatar

    Erika shared an experience

    Oh No (Diagnosed): My sister was diagnosed with Her2 breast cancer last week after a biopsy. She has received two sugeon opinions.... should she see an Oncologist before she has surgery? This is all so new