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    Question: Where do we start?

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    erink asked a questionBladder Cancer

    I had chemo which did not work on my bladder cancer. I found a trial with Nivolumab immunotherapy. How long will I need to stay on this if t

    • LiveWithCancer's Avatar
      LiveWithCancer

      I started Nivolumab in a clinical trial in 7/2013. I still get an infusion every 2 weeks. I have lung cancer. Some people who receive Opdivo (nivolumab) only get it for a limited time. It seems to keep working for months (at least) after treatments end. I think that they are continuing to give me infusions to see how long a person can receive treatments before (or if) it affects other organs in the body.

      At any rate, I would guess that your response to the treatment and the clinical trial itself will dictate how long you will need to stay on the drug. Know that you can withdraw from a clinical trial at any time for any reason.

      over 5 years ago
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      SandiA

      Hi, I started a trial with nivolumab November 2014. I am suppose to have infusions every two weeks for two years. I have had to stop and start several times due to other illnesses. Right now I am back on the trial and I have my next infusion Monday. I have stage iv melanoma. Like Live said I am sure you can withdraw from the trial at any time. I personally have found it to be a positive experience and has really helped shrink or keep my tumors from growing. I wish you all the best. Sandi

      over 5 years ago
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    erink wrote on tlccajun's wall

    Hello tlccajun,
    I see we have something in common. Im new to this site and quite honestly am not real good on finding my way around. So I hope this reaches you. I hope things are going as well as to be expected for you. Im still a young one in this game of Cancer. Am afraid beyond words. I am so looking to hear some good news from a fellow cancer patient who can perhaps shed some light on this dark place im in. I realize so much is attitude, however, I cant seem to pull my head out of my XXX. Cant seem to think future...

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    erink shared an experience

    Drug or Chemo Therapy

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    erink shared an experience

    Clinical Trial