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    Evonn asked a questionBreast Cancer

    Buffalo Hump

    6 answers
    • Evonn's Avatar
      Evonn

      Yes. I have developed this. I have no evidence of Cushing or any other disease process

      over 1 year ago
    • GregP_WN's Avatar
      GregP_WN

      I am curious what your doctors say caused this, if something other than steroids, and what is the remedy if any? Have you been able to bring it up with them yet? I know getting an appointment outside of your regularly scheduled appointments is tough.

      over 1 year ago
    • ChicagoSandy's Avatar
      ChicagoSandy

      My primary says it was from a combo of untreated scoliosis (excessive spinal curvature), a lifetime of lousy posture, and osteopenia (not yet osteoporosis, but getting there--especially with estrogen deprivation from AIs). He "prescribed" working with a personal trainer to get my muscles strong & limber enough to keep my head erect and shoulders back without feeling awkward or painful, and doing posture exercises (including the cliche "book-on-top-of-head" walk).

      There is an operation called a kyphoplasty, but it's major spinal surgery--and you don't want to mess with the spine--especially cervical, which can risk quadriplegia or stroke--unless it's to prevent an impending severe disability or correct one. It's generally not done unless imaging indicates severe degenerative cervical disk disease and almost bone-on-bone neck & upper back vertebrae, and almost never on anyone younger than 70.

      over 1 year ago
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    Question: Buffalo Hump

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    Evonn shared an experience

    Milestones: One year out. Diagnostic mammogram on unaffected breast is clear.

    1 Comment
    • Bug's Avatar
      Bug

      Yeah! That is great news. Good for you. : )

      over 4 years ago
  • Evonn's Avatar

    Evonn asked a questionBreast Cancer

    Recovery Stage Paranoid Schizophrenic

    12 answers
    • Bug's Avatar
      Bug

      My oncologist referred me to a counselor who specializes in cancer issues. She is really good - really "gets it". She is affiliated with my medical group and is free of charge. Maybe you could ask your onc if there is someone like that that you could talk to...? Very best wishes to you.

      over 4 years ago
    • BoiseB's Avatar
      BoiseB

      Bug my medical center also has counselors one of them is a trained medical hypnotist. She helped me greatly with anxiety.

      over 4 years ago
    • Anniekell's Avatar
      Anniekell

      i hope you find peace.

      over 4 years ago
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    Evonn wrote on PinkyPromise's wall

    I am from Akron Ohio and was diagnosed last year with Stage IIB tnbc. I also had ACT chemo but opted for a mastectomy to avoid the radiation. How are you doing now?

    3 Comments
    • PinkyPromise's Avatar
      PinkyPromise

      Hi! I opted for a mastectomy, too -- no radiation for me either. Plus, I had such dense breasts that I didn't realize the tumor wasn't a cyst. I figured I'd avoid repeating that mistake.

      I'm doing pretty well now. My biggest complaint is that I don't have the energy I'd like to have, and I'm still carrying the 30 pounds I gained during chemo.

      How are you feeling?

      over 5 years ago
    • Evonn's Avatar
      Evonn

      I am doing better. Getting back close to normal. Trying to live without the fear is the hardest part. I'm so glad we connected on here.

      over 5 years ago
    • PinkyPromise's Avatar
      PinkyPromise

      Going to a cancer conference in the morning. Keynote speaker is Joan Lunden (also TNBC). So excited!

      over 5 years ago