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    Fight4Life wrote on tracyt's wall

    Hi Tracyt,

    I wanted to check in to see how you are doing. I pray that things are well.
    I just received news that I have metastatic disease. I'm still trying to wrap my mind around this; however was hoping you would be willing to share the name of your treatment center. I'm seeking a team that is cutting edge that will never give up on me and it sounds as though that is the type of team you have. If you can please share the name of your providers I would greatly appreciate it as I am considering traveling there for care.

    Warm Regards,
    Fight4Life

    1 Comment
    • tracyt's Avatar
      tracyt

      Hi Fight4Life, Im sorry to hear that you have MBC. Just like you, I couldn't wrap my mind around it either. I pray that God will direct your path to help you make the right decision. I have more than one oncologist. My main oncologist was under Oncology specialist of Charlotte. They recently made a lot of changes and some of them are now a part of Presbyterian hospital aka Novant Health system. In my opinion, as a person that's been dealing with this for a long time, Novant has the best care. They have a second opinion clinic that allows you to get another point of view. The oncologist there can also refer you to a clinical trial doctor if that's what you want. Let me know if I can help you any further.

      6 months ago
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    Fight4Life wrote on tracyt's wall

    Hi Tracyt,
    I just wanted to check in to see how you are doing. Also, you mentioned that you lost your best friend, her mom & aunt while battling at the same time. I'm so sorry for your losses and I can't imagine how difficult a time that must have been. I'm curious as to what you would attribute your survival? Did you all have the same course of treatment? Why is it that some of us live & others die while fighting the same/similar battles?

    4 Comments
    • Gabba's Avatar
      Gabba

      Happy Anniversary and Happy Birthday!

      8 months ago
    • Fight4Life's Avatar
      Fight4Life

      Happy Anniversary and Happy Birthday! You are such an inspiration to us all. I am claiming the victory! I try to maintain a positive attitude & have managed neoadjuvant chemo, a double mastectomy, and currently adjuvant chemo really well. I've been able to work full time throughout this entire journey & most people aren't even aware that I'm battling cancer. I am in Rochester, NY and have a local team, a team at MSK in Manhattan, and recently connected with a doctor in Oregon as well. I have conducted extensive research and literally am in this fight for my life for life. The next time I'm in CLT I hope to connect with you. In the meantime thank you for your continued inspiration, you are my shero!

      7 months ago
    • tracyt's Avatar
      tracyt

      Thank you @Gabba.
      Thank you @Fight4Life, You're welcome and Im here anytime you need me!

      7 months ago
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    Fight4Life wrote on tracyt's wall

    Hi Tracy, I'm new to this forum but hoping you are willing to share the name of the immunotherapy trial and an update on how things are going.

    2 Comments
    • tracyt's Avatar
      tracyt

      Hi Fight4life, Welcome to whatnext. This forum is all about helping each other, sharing and letting people know that you are not alone. I've been on two different immunotherapy studies. Most of them have letters/numbers but are not named until they've been around for a certain amount of time. The first study was "MEDI9090" The first & second scans appeared to look a little larger but we decided to wait till scan #3 cause they may have been inflamed from the treatment. Im so glad we did cause scan #3 showed a significant change. The tumors in my body were shrinking and I was doing very well. Then I got the worse migrain ever, out of nowhere. My doctor didnt think it was brain mets cause the tumors everywhere else were shinking so well. However, He informed me that TNBC like to hide in the brain so we did a scan and sure enough it was there. As a result of the mets, I no longer qualified for the study. I went through brain radiation and I had to wait a month before I could try a new study. I had 14 tumors in my brain and 2 were the size of golf balls. There was no known drug that could actually penetrate the brain but scientist had just put something together that had never been tried on a human. I had nothing to lose at that point so I became that first human. I was scared because they explained to me, I would be the only one that can say what the side affects were cause they had no ideal, plus we could only pray that it would penatrate the brain. It didnt just penetrate the brain, it shrunk both my brain & body tumors by 70% and that one is called,"ABBV-368." This study has allowed me to look and feel great. No one believes I am a stage 4 cancer patient cause It doesnt beat you down like chemo does. Now after doing so well, being on this study over 2 years, here comes new brain mets.(bummer) Im about to get spot radiation to target the new tumors. I just hate that I cant go back to the same study cause it was the best. They already have a new study planned for me when Im done radiaton. Im from New Jersey but I moved to North Carolina years ago. I loss my best friend, her mom and her aunt to Tnbc, We were all battling it the same time. I tell everyone, N.C is the best kept secret when it comes to cancer. There is a lot of cancer research centers here. I have been able to actually talk to scientist that are working hard to cure us. If you are in N.C. or close, I think it's more here for TNBC. I hope I've helped you by sharing my story. Stay positive and keep the faith. Im here if you need me.

      9 months ago
    • Fight4Life's Avatar
      Fight4Life

      Wow, you are truly amazing! I admire your resilience and positivity. When everything I have read about tnbc is doom and gloom you give me hope! Although I'm in upstate NY I would definitely consider NC for treatment. Thank you for sharing your journey. I'm praying for you. Please keep in touch.

      9 months ago