• Firstlady's Avatar

    Firstlady shared an experience

    Side Effects (Fatigue (tiredness))

  • Firstlady's Avatar

    Firstlady shared an experience

    Drug or Chemo Therapy (Chemotherapy)

  • GregP_WN's Avatar

    GregP_WN wrote on Firstlady's wall

    Hello and welcome, we are happy to have you with us. Please feel free to join in the conversations. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started with the help you need right now.

    https://www.whatnext.com/conditions/cancer/multiple-myeloma

    There are also subtypes listed on this page to narrow down the type of cancer to match your dx. Also, if you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the database to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall.

    Thanks for being with us and let me know if I can help you find any information on the site.

    Just click this link to invite them to join. http://www.whatnext.com/recruit-a-friend

    Follow Us on Twitter Click Here =>http://bit.ly/XExkce
    Find Us on Facebook Click Here =>http://on.fb.me/zjBAPl
    Our Pinterest Page with Resources=>http://bit.ly/12qVtEs
    Follow Us On Instagram=>>http://bit.ly/1pF5yh0
    Our YouTube Channel http://bit.ly/2zyUxt9
    Our Help Page with instructions for the site->http://bit.ly/1aR5165

    Watch Our Welcome Video=>>https://youtu.be/Y5QZZsC-H38

    GregP 3X Survivor
    WhatNext Community Mgr
    3X Wego Health Awards Finalist
    ACS Voice of Hope Speaker

  • BuckeyeShelby's Avatar

    BuckeyeShelby wrote on Firstlady's wall

    Hi Lady. Welcome to What Next. There are lots of great people here. If you have any questions please use the question tab above -- that way everyone will have access & you'll get a quicker response. I'm glad you found us but sorry for the circumstances that led you here. Wishing you all the best.

  • Firstlady's Avatar

    Firstlady shared an experience

    Drug or Chemo Therapy (Chemotherapy): I was diagnosed with multiple myeloma stage 3 on Nov 8th 2018 I have 70 percent in my bone marrow and the doctor started me on an aggressive cocktail of Velcade. I will be having a stem cell transplant which the Doctor feels will be in 6 months. I have tumors on my skull and Im missing a 17 chromosome which Ive been told means I will never have a complete remission because the cancer will continue to come back. It's been quite a journey and Im still trying to figure out what life has in store for me.

    1 Comment
    • lynniepoo's Avatar
      lynniepoo

      Hi
      My name is Lynne and I was diagnosed with MM in August of 2011. My oncologist didn’t tell me much about my status but I knew I had tumors on my spine with 5 compression fractures. I was also told I had the same chromosome which meant I wouldn’t ever go in to complete remission. I had about 6 months of velcade/steroid treatment. I reached a plateau and my oncologist and the stem cell dr decided to add Revlamid to the velcade to get my numbers down to where they could do the stem cell transplant. 3 months later I had the SCT. I started on Revlamid maintenance 3 months later and have been as close to remission as I can be. If I didn’t have constant pain from the compression fractures I would be pretty good. If you have any questions please feel free to contact me.

      3 months ago
  • Firstlady's Avatar

    Firstlady shared an experience

    Oh No (Just Diagnosed)