• FLH's Avatar

    FLH posted an update

    We lost our battle 9/02 and Nadya is gone ,
    Everything is over for me now

    over 8 years ago
  • FLH's Avatar

    FLH wrote on KarenG_WN's wall

    Yes we have been in contact with the american cancer society for some time now,they have provided us with pratransit tickets but the best help we have received was from (CAN) the corporate angels network and the pilots for christ.
    There is a very serious problem with her calcium now, and it seems it will be hard to take part in this trial or even to get Chemo anymore...Pray for us

    over 8 years ago
  • FLH's Avatar

    FLH posted an update

    Hello , I'm going to tell you a bit about our battle,
    My wife was diagnosed on her birthday 12/08 of last year while we were visiting some family in east Texas i had never really known .
    I have seen many terrible things in my life and had many terrible things happen to me in my life but nothing was worst than seeing my wife's life leave her right in front of my eyes and i had no power to do anything to stop it from happening.
    I first took her to the east Texas medical center and they could do nothing but tell me we did not have a chance to fight because we did not have any insurance and one of the nurses went so far as you tell me i had to know when to let go.
    If i had been able to provide those people with some insurance they still would have done nothing but kept her full of drugs and let her die.
    One of the reasons we had gone down to east Texas was to take care of some land business with my family and learn what type of people the are . I am a heir to land oil and natural gas rights.
    I sold my mineral rights for pennies because i was desperate to get my wife treatment,
    I then found PCIP pre existing illness insurance ( this is what the people at the east Texas medical center told me i could never get) I then did research and found MD Anderson in Houston Texas was in the network for the insurance plan,She was on oxygen and could not fly at that time,Our Subaru had broken down from the east Texas roads,i had no credit card to rent a car and my east Texas family seem to have some kind of race problem going on with them so i got no help from them to drive us there and the only thing left to do was rent a u haul truck because the only thing that mattered to me was getting her there.
    Once we got there she had a blood transfusion and a few days later she had her radiation treatment it was almost like magic .
    She stopped bleeding,her bladder and liver started working again.
    After a couple of more trips across Texas,the paying for the month stays in the motels in Houston,the deductible for the insurance and still paying for the apartment back in east Texas our funds had gotten pretty low , my other income had been cut off and all we had was the money from me selling out but i then found the east Texas oncology in long view Texas which was about 50 miles from Carthage Texas which was where we were staying.
    MD Anderson had made the plan for the chemo treatment so they only had to follow the program that was made and they did a great job of it because by her second chemo she did not need oxygen and she was responding very well.
    I knew soon i would not be able to pay the premium any longer and that would have been the end of her treatment but i then came up with another plan.
    Since she did not need oxygen any longer this meant she could fly and i then found the corporate angels network and the pilots for Christ, the people fly cancer patients where ever they need to go to get treatment for free.
    I had to make a appointment with a doctor back here in the bay area for the plan to work ,so i found the cypress women s cancer center in walnut creek which happen to be in our insurance network.
    I knew the insurance was going to stop at any moment but it lasted long enough to make the appointment the very next day after she did not need the oxygen any longer and the very next day after we arrived back in the bay area,we were at her appointment in walnut creek but right after the appointment they gave us the bad news that the insurance had been denied which i knew was going to happen and i had already been in contact UCSF and Alta bates and from talking with the people i learned she could go the highland hospital and get fast emergency medi-cal for women with cancer and we could keep her treatment going and she did have a chemo there at highland but she did not respond to it very well and now she is being treated by a great young doctor who i have all the faith in at UCSF, we are truly homeless and trying to stay as close to the hospital as possible.
    We are very lucky that the national cancer institute has sent some tickets for the para transit.
    We have been taking every avenue we can,some have been dead ends with incorrect info and some have been a great help.
    We are open to any and all suggestions

    over 8 years ago
    1 Comment
    • KarenG_WN's Avatar
      KarenG_WN

      Hi FLH, I am sending you a big virtual hug right now. It sounds like you are doing everything possible. Have you contacted the American Cancer Society? They have a 24 hour phone line and you can access the phone number to the right and at the bottom of this page. Any luck with Medicaid?

      We've also had several discussions on Whatnext about dealing with fiscal issues of cancer. Here is a link to those discussions: https://www.whatnext.com/questions?utf8=✓&question_query=financial&commit=Search

      I also suggest you post a question in our Questions section (you can do this by clicking on Questions in the purple bar above). And you can ask how others dealt with a similar issue.

      Please keep us posted and do call the American Cancer Society. They have many resources and can suggest some next steps. You are not alone and we will do whatever we can to help.

      over 8 years ago
  • FLH's Avatar

    FLH shared an experience

    Clinical Trial (Other)

    over 8 years ago
  • FLH's Avatar

    FLH shared an experience

    Radiation (External radiation )

    over 8 years ago
  • FLH's Avatar

    FLH shared an experience

    Drug or Chemo Therapy (Chemotherapy)

    over 8 years ago

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