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    FLsun started following

    Question: PVC's of Heart

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    FLsun asked a questionHodgkin Disease

    Hodgkin's & UC/Crohn's peeps: did any of you use Remicade infusions?

    • GregP_WN's Avatar
      GregP_WN

      I had MOPP and ABVD no Remicade.

      over 5 years ago
    • Kathy1's Avatar
      Kathy1

      I had ABVD. It did put my aplastic anemia in remission. From what my doctor said the immunine suppressants in the chemo did it. He said it normally lasts two years and for some longer.

      over 5 years ago
    • FLsun's Avatar
      FLsun

      I'm sorry, I should clarify: I wanted to know if anyone who has/had UC or Crohn's was treated with Remicade. If so, did you develop lymphoma after starting Remicade? My MDs seem to suspect Remicade induced lymphoma. Next question, after finishing chemo, how did you treat your IBD? Biologics like Remicade are now out of the question for me.
      Kathy that's great your anemia was resolved!! :)

      over 5 years ago
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    FLsun shared an experience

    Decision Point (Also UC/Crohn's): So 4 years ago I was diagnosed with UC. So wrong because I LOVE food. Like really good, skillfully made food I appreciate so much. And a nice glass of wine to complete it! Sadly, food became my enemy. I've death with it and cheated from time to time, but has to really watch what I eat. Anyway, for the past 3 years I was treated with Remicade infusions. It seemed to help, but was never in a real remission. August 21 I went to the ER in excruciating abdominal pain, thinking it was a bad UC flare. During CT scan they saw extensive enlarged abdominal lymph node. Long story short, it's Stage IIIA Hodgkin's. The hospitalist, GI, and oncologist I saw there had small suspicion it may be Remicade induced lymphoma. This is not common occurrence and I'm not even sure it can be proved. (Prior to UC I was very healthy person!) I've read many articles about it, but they all ended in negative outcome (death). I really think I can beat HL, but need to figure out what to do for the UC afterwards. Oh, that diagnosis has since been updated to Crohn's disease. I can't go back to Remicade or any other biologics in that class. I will avoid surgery until I have a very poor quality of life. If anyone has any information they can share, or any experience with something like this I would greatly appreciate it! Thank you!