• GregP_WN's Avatar

    GregP_WN wrote on FLymphoma18's wall

    Hello and welcome, we are sorry for your diagnosis, but we are happy to have you with us. Please feel free to join in the conversations. Here is a link to our cancer dx page, Take a look at it to get you started on some information. You will notice at the left side of that page a listing of most types of cancer. You can scroll down to find your diagnosis. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started with the help you need right now.


    If you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the database to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall.

    Thanks for being with us and let me know if I can help you find any information on the site.

    Follow Us on Twitter Click Here =>http://bit.ly/XExkce
    Find Us on Facebook Click Here =>http://on.fb.me/zjBAPl
    Our Pinterest Page with Resources=>http://bit.ly/12qVtEs
    Follow Us On Instagram=>>http://bit.ly/1pF5yh0
    Our YouTube Channel http://bit.ly/2zyUxt9
    Our Help Page with instructions for the site->http://bit.ly/1aR5165

    Watch Our Welcome Video=>>https://youtu.be/Y5QZZsC-H38

    GregP 3X Survivor
    WhatNext Community Mgr

  • Schlegel's Avatar

    Schlegel wrote on FLymphoma18's wall

    I just want to say things will get better. I was diagnosed with follicular lymphoma, stage 4, in 2005 at age 60. I have lived a fairly full life since then.

  • FLymphoma18's Avatar

    FLymphoma18 wrote on CraigC3522's wall

    OMG you were even younger than I am.

  • FLymphoma18's Avatar

    FLymphoma18 shared an experience

    Clinical Trial

  • FLymphoma18's Avatar

    FLymphoma18 asked a questionNon-Hodgkin Lymphoma (NHL)

    Are there any treatments using stem cells

    • po18guy's Avatar

      Can you be a bit more specific? "Stem cells" relates to immature cells produced in the bone marrow. They are involved in the two major classes of stem cell transplants: autologous and allogeneic. Autologous transplants use your own cells, which are harvested and re-introduced to your bloodstream after your marrow/immune system has been neutralized. Allogeneic transplants use blood stem cells from a donor, whether related to you or not, again after your original immune system has been neutralized or eliminated.

      Is doctor proposing a stem cell transplant in your case?

      5 months ago
    • FLymphoma18's Avatar

      I was not proposed anything related to this I have been hearing so much about how this can held people with knee and hip pain. Just wondering. because they are talking about going to start chemo and I hate that idea.

      5 months ago
    • po18guy's Avatar

      Oh, that would probably be an allogeneic stem cell transplant in cases of serious auto-immune disease. There are many auto-immune diseases and conditions (from Psoriasis to Lupus to Rheumatoid Arthritis) which involve the patient's own immune system attacking healthy cells. The reasons for this are not completely understood.


      However, prior to such a radical procedure as a stem cell transplant, there are many new drugs in the "inhibitor" class which regulate one's own immune system so as to reduce or eliminate the body's attack on itself. I would think that it is prudent to try the various immune modulating drugs before undergoing a transplant.

      As to chemotherapy, there is far less to fear these days than even in the recent past. New drugs have entered the market at a steady rate and non-chemo "biological" drugs are gaining popularity. In cases of follicular lymphoma, the standard is often some modification of the age-old CHOP regimen used against lymphoma. Commonly, the new drug Rituxan is added, to make R-CHOP.

      On occasion, a substantially different variation is administered. It is known as B-R, for Bendamustine plus Rituxan. Both regimens are generally far superior to th "old guard" chemo regimens.

      Oh, and as to chemo, since August 2008, I have received 20 drugs in something like 11 or 12 regimens, 19 of those drugs anti-cancer - either chemotherapy of biological. Add to that full body irradiation and an allogeneic stem cell transplant. I am still here, and delighted to be anywhere at all.

      5 months ago
  • FLymphoma18's Avatar

    FLymphoma18 started following