• foxxen's Avatar

    foxxen shared an experience

    Drug or Chemo Therapy (Chemotherapy): One final 7-day blast of Chemo before the Stem Cell Transplant. This one was MUCH worse than the others and I ended up getting horrible mucositis and couldn't eat or drink for about a week.

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    • Celste51's Avatar
      Celste51

      @foxxen - I have dreadful mucositis right now after being unhooked on Wednesday. I have tried the magic mouthwash and it isn't working. What did you do in the end to get rid of it? x

      about 3 years ago
  • foxxen's Avatar

    foxxen shared an experience

    Procedure or Surgery (Long-term catheter): I had to have my tri-lumen reinstalled. We decided it would be easiest to do it now while my counts are normal so that I have a good chance of healing quickly. So far so good... it's just as much a pain in the butt as I remember. I miss hot tubs

  • foxxen's Avatar

    foxxen shared an experience

    Decision Point (Decided to continue with a Second SCT): Due to the nature of my mutation, we have decided that even though I am in remission and seem to be doing very well with the medication, our best course of action is to undergo a second Stem Cell Transplant using a new unrelated donor.

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    foxxen shared an experience

    Celebration (Cancer is shrinking): After one 28-day cycle of ASP2215, my first Bone Marrow Biopsy shows no signs of either cancer or the FLT3 mutation. I'm the first person in the entire study who has had these results! The Scientist/Physician in charge of the study here is actually writing an abstract on my case to present at a conference in December. (I'm trying to talk them into bringing me along.. all expenses paid, of course!)

  • foxxen's Avatar

    foxxen shared an experience

    Celebration (Anniversary): My one year post-transplant anniversary. It worked, as I am 100% donor right now, but there were some pesky cells that just had to bite me in the XXX (literally)

  • foxxen's Avatar

    foxxen shared an experience

    Clinical Trial (ASP2215 for Relapsed FLT3 AML): Within a matter of days, my doctors and research coordinator were able to get me enrolled in a clinical trial for a new medication in it's first stage of human trials. The science XXX in me is excited to be included in a medical experiment. The mother in me prays I'm doing the right thing.