• GregP_WN's Avatar

    GregP_WN wrote on francine's wall

    Welcome to WhatNext, we are sorry for your need to find us, but happy that we can help you. There are a lot of great people here that have already been through what you are facing and are willing to help you get through it too. If you have questions about anything just post them on the Questions Page. Others will chime in with their personal experiences.

    If you need help navigating the site, please contact me, we are happy to assist. We also have active social pages, you may wish to search those out also. Take some time and poke around the site, there is a world of information here that you will find. The more you dig, the more you will find.

    We have an opportunity for you to make your voice heard with our partner Rare Patient Voice (www.rarepatientvoice.com) to be invited to qualify for surveys and phone interviews for projects that apply to you and if you do qualify you will be compensated on a $100 per hour basis. There are pharma companies that would like to hear about your experiences with certain drugs or side effects. Your information might help develop the next generation of drugs.

    Rare Patient Voice will send you an email inviting you to join their panel. If you say no or don't respond to them at all you will not be added to their panel.

    If you say yes be assured your information is only shared with Rare Patient Voice and is treated with the highest degree of confidentiality. If at any time you want to opt-out of receiving invitations to projects you can do so immediately.

    Thank you for joining us, if you have questions please contact us.
    5X Survivor

  • JaneA's Avatar

    JaneA wrote on francine's wall

    Welcome from a Stage IV rectal cancer survivor. I am sorry that we have to meet under these circumstances. I've been where you are now. Please ask questions, and we'll share our experiences. By the way, I've worn that pump - yes, the fatigue is horrible.

  • francine's Avatar

    francine shared an experience

    Drug or Chemo Therapy (Chemotherapy): after chemo wear portable pump for 48 hours

    1 Comment
    • lo15's Avatar

      Pump is common with some chemo's. Its very easy to disconnect, I was taught to do it at home, saves a trip back to the hospital. There are different kinds of pumps , electronic ones are much better than the gravity kind. Good Luck

      3 months ago
  • francine's Avatar

    francine started following

    User: GregP_WN

  • DaveWaz's Avatar

    DaveWaz wrote on francine's wall

    Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

    Wishing you the best.

    Founder, WhatNexter