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    Question: chemo pain

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    GailB shared an experience

    Clinical Trial (Car Engineered NK 2016-0641 MD Anderson): I go next week to do this. They will be taking Natural Killer Cells from and Umbilical Cord and Genetically Reengineer them to Kill the CLL. The thing that worries me the most is that they have only done it to 2 other people. The first one was in July and has done very well. The second person got the cells last week during Hurricane Harvey and they are doing fine. The goal of this trial is to actually cure the CLL or at the minimum give me an extended remission. Hoping for the cure but will settle for 2-3 yrs remission something I have not been able to achieve since I was diagnosed in 2011

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      mja511

      Prayers headed your way. I'm very interested to see the results of this trial, Please keep updating on your progress.

      9 months ago
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    Drug or Chemo Therapy (Chemotherapy): Well my CLL is just not cooperative at all. Did not get a long remission after doing the Treanda & Retuxin. Held out as long as possible and got multiple opinions and in the Fall of 2016 started doing Imbruvica but that only pushed the CLL so far back and then we were not making and head way only holding it where it was, so in May started on Venteclax and made great head way in my bone marrow and blood but Lymph nodes were only getting minimally smaller. I decided to go ahead and do a Stem Cell Transplant when I achieved MRD or CR if it looked like that was going to be possible. My brother is a perfect match for me and that was one of the reasons that I decided to do it. Never got that far as I was offered me an opportunity to do a trial so that is what I am going to do. If it does not work the Stem Cell Transplant will still be an option.