• GregP_WN's Avatar

    GregP_WN wrote on GaryK's wall

    Welcome to WhatNext, we are sorry for your need to find us, but happy that we can help you. There are a lot of great people here that have already been through what you are facing and are willing to help you get through it too. If you have questions about anything just post them on the Questions Page. Others will chime in with their personal experiences.

    If you need help navigating the site, please contact me, we are happy to assist. We also have active social pages, you may wish to search those out also. Take some time and poke around the site, there is a world of information here that you will find. The more you dig, the more you will find.

    We have an opportunity for you to make your voice heard with our partner Rare Patient Voice (www.rarepatientvoice.com) to be invited to qualify for surveys and phone interviews for projects that apply to you and if you do qualify you will be compensated on a $100 per hour basis. There are pharma companies that would like to hear about your experiences with certain drugs or side effects. Your information might help develop the next generation of drugs.

    Rare Patient Voice will send you an email inviting you to join their panel. If you don't respond you will be added to their panel. Be assured your information is only shared with Rare Patient Voice and is treated with the highest degree of confidentiality. If at any time you want to opt-out of receiving invitations to projects you can do so immediately.

    If you say no you will not be added to the panel.

    Thank you for joining us, if you have questions please contact us.

    Greg_WN
    WhatNext Community Mgr./Social Media Mgr.
    5X Survivor

  • GaryK's Avatar

    GaryK shared an experience

    Decision Point (Progression seen on Liver after one year on Tagrisso): Discussing possible local radiation to liver after Guardant360 results are received.

  • GaryK's Avatar

    GaryK shared an experience

    Side Effects (Weight loss)

  • GaryK's Avatar

    GaryK shared an experience

    Side Effects (Fatigue (tiredness))

  • GaryK's Avatar

    GaryK shared an experience

    Side Effects (Diarrhea)

  • GaryK's Avatar

    GaryK shared an experience

    Drug or Chemo Therapy (Targeted therapy)