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    gcmx shared an experience

    Decision Point: Sequence-of-Events - October 5, 2014 - Chemo Port-Catheter Implant Surgery - Mount Sinai Hospital, New York, NY

    1:00pm - Met with my designated clinical research nurse at 1470 Madison Avenue for document signing, etc.

    2:15pm - Directed by my designated clinical research nurse to patient intake receptionist at 1468 Madison Avenue.

    2:45pm - Directed by intake receptionist to sub-level O.R. department for procedure registration.

    3:15pm - Greeted by registration nurse for general examination and change of clothing.

    4:00pm - Directed by O.R. nurse to a cold, depressing waiting/recovery room.

    6:15pm - Greeted by O.R. Nurse and Anesthesiologist for medical questioning. It was then decided by the Anesthesiologist to use a local anesthetic in lieu of anesthesia, which was originally intended. Reason for Anesthesiologist’s procedural change was because of a possible obstruction at the back base of tongue, in the event a respiration ventilator was needed.

    6:30pm - Directed to a cold, intimidating, disorderly Operating Room, for Port implant surgery. It felt more like being in a Storage Room, with what looked like an operating table in the middle.

    6:40pm - O.R. personnel prepared upper right chest with skin disinfectants, dressings, etc. During this time, O.R. personnel explained that slight stinging and pressure sensations would be felt. Also heard them discuss whether or not to shave my right chest area.

    6:50pm - Port surgical implant procedure began, starting with a local anesthetic applied to the upper right chest area. At this time, I noticed in the corner of my eye that the Anesthesiologist was preoccupied with a cellphone...shockingly unbelievable. Probably playing tic-tac-toe.

    6:55pm - Started to experience extreme pain in upper right chest area from surgical chest incision.

    7:00pm - During the procedure, things became complicated with the Port implant. Also began to experience extremely unbearable pain in the upper right chest/neck area from a second uncommon incision, which was incredibly painful enough to the point where I made several exceptionally loud outbursts stating "PUT ME OUT, STOP THE PROCEDURE!!!! - STOP!!! - STOP!!! - STOP!!!" After aggressive squirming and kicking, constant swearing, and my demanding insistence to stop while on the table, my legs and arms were forcibly held down against my will as the operation continued. Finally, I was sedated, right after hearing someone say “What Do I Do Next!?” Five unexpected words, that I will never forget.
    8:20pm - Woke up in the recovery room, feeling completely violated by amateur medical personnel in the O.R., the worst hospital experience ever encountered...absolute inhumane torture. It was also noticed that a towel located behind my neck was completely saturated with blood, amounting to at least a cup full, if not more.

    9:00pm - Dressed and left the hospital in a very distressed, sour mood.

    9:10pm - Could not locate anyone to validate my hospital parking ticket. With the help of a security concierge at 1470 Madison Avenue, I learned that my car was moved from the 104th street parking lot to another hospital garage located on East 99th street. After explaining my horrid situation at the hospital, the parking attendant wanted to charge me 35 dollars to retrieve my car. I immediately objected insisting on seeing a security/parking supervisor. After battling back and forth for several minutes, while showing my hospital wristband, we mutually settled on a 15 dollar parking fee. Hospital patients, cancer patients especially, should NOT be required to assume the cost of parking in a hospital garage, it is an outright insult to the client patient.

    9:45pm - Arrived home feeling weak, and extremely frustrated, without a prescription for pain-killer medication, which is typically given after an experience as described. As a result, the rest of the night was uncomfortable and sleepless.

    Would I go back to Mount Sinai Hospital again, knowing what I know now? The answer couldn’t be any more obvious…..ABSOLUTELY NOT!!!

    After experiencing two major, flawless neck/throat operations at Hackensack University Medical Center, which also offers FREE garage parking for cancer patients, I spent 2 years looking for viable alternatives rather than committing to chemo therapy, only to finally give in by carefully choosing Mount Sinai Hospital for treatment...a decision I am now beginning to regret. Unfortunate for me, but I am not able to go back to HUMC due of unrelated personal reasons.

    An Official Complaint Will Be Filed On Monday . . .

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    User: CancerNews

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    gcmx shared an experience

    Clinical Trial: Anybody have any info on Immunothearpy?

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    gcmx shared an experience

    Decision Point (What to do next.): Neck cancer is growing, and I'm not enthusiastic about committing to chemo/radiation treatments.

    1 Comment
    • TammyF's Avatar
      TammyF

      It is certainly a personal experience and everyone is different
      But please read from people here. I think you will find it is not as bad as they thought and it does kill cancer cells. My husband has had 35 radiation treatments and 2 months of chemo he hasn't lost his hair he takes meds for nausea and it works, he is just tired for a few days after treatment.
      I know chemo and radiation gave my husband at least two years of good quality time he would not have had if he chose not to have treatment. And he still here, year Three of fighting
      Good luck to you I will follow you and if you ever want to talk I am here my husbands caregiver

      over 7 years ago
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    gcmx shared an experience

    Oh No (Cancer is back/Recurred ): Neck cancer reoccurred Nov. 2013, 9 months after initial surgeries.

  • gcmx's Avatar

    gcmx shared an experience

    Decision Point (Chemo and/or Radiation, or Nothing): Did not commit to chemoradiation after surgeries.