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    genagirl wrote on Dee50's wall

    What is treatment like? How bad?

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      Dee50

      Well chemo sucks, but sounds like you already know that.
      Radiation wasn't too bad. Are they doing brachetherapy? Uncomfortable, but certainly worth the discomfort to keep on living.
      D.

      over 5 years ago
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      genagirl

      I don't know. I did well with chemo the first 6 rounds but it was a different kind, this is Doxil. I start it next week and she never said anything about brachetherapy at all. This is all coming at me so fast and I am confused and depressed and angry and scared all at the same time. I thought I was doing well and then last Friday my world fell apart. She never mentioned radiation either. I will be seeking a second opinion, I want to get my life back. I just want to do things, and be okay. I'm sorry to sound like a whining fool, but I am afraid and confused.

      over 5 years ago
    • Dee50's Avatar
      Dee50

      I would definitely ask about radiation. Both external beam and internal beam (brachetherapy) I believe is standard of care for vaginal cancer. Is your oncologist specifically a gynecological oncologist? I've had so many different kinds of chemo drugs I can't remember them all. I think I started with cisplatin, or one of the platinum based drugs. My advise is to do your own research. Ask specific questions. Get a second (and third!) opinion. Do not allow the medical community to shuffle you along like a sheep. They don't want you to live as much as you want to live. Be your own advocate! Even when it's exhausting and you're so sick of doing cancer research you could puke--keep going. It's the only way you'll feel like you did everything you could possibly do for yourself.
      D.

      over 5 years ago
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    genagirl wrote on lilsniffles's wall

    lilsniffles, I just got this diagnosis on Friday. I am terrified, can you give me any idea what is going to happen? My ovarian cancer spread, I thought I was on the road to recovery but this has pulled the rug from under my feet and sent me into a deep, dark place. Please, help me if you can. I hope you are doing OK,and know I am sending my good wishes to you.

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    genagirl wrote on LiveWithCancer's wall

    LiveWithCancer, thanks for your kind words. My ovarian cancer spread. It is so scary.

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