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    User: Grandpa_Ray

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    User: C_Finkbeiner

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    geskoi wrote on C_Finkbeiner's wall

    Hang in there! How long did your tandem transplant last? Mine was almost 3 years, so I hope yours was longer.

    I'm pretty sensitive to Velcade, my calf muscles especially, and thalidomide isn't great for neuropathy. I'm now on cyclophosphomide and dexamethasone, and that seems pretty easy to take. My M-spike has remained at 0.1 for almost 6 months. So there are other options, other than the new drugs, like carfilzomib. It's good to have hope!

    It was sad to read about your son. We sent ours off to community college today, and hope for his safety. I will be hoping even more so now.

    Best wishes.

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    geskoi shared an experience

    Procedure or Surgery (Implant chemotherapy port): Hickman catheter implanted by Dr. Hickman himself.

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    Drug or Chemo Therapy (Maintenance chemotherapy): cyclophosphomide, dexamethasone

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    Drug or Chemo Therapy (Chemotherapy): dexamethasone, cyclophosphomide, Adrimycin, etoposide