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    GetItOut asked a questionNon-Hodgkin Lymphoma (NHL)

    Working while on treatments?

    10 answers
    • cllinda's Avatar
      cllinda

      It depends on how you feel, the working environment and your job. Before cancer, I was a preschool teacher and that meant that I would be exposed to many germs from children. So as soon as I found out my plan I had to take a leave off absence. The chemo made me so sick that I ended up in the hospital four times. And by the time I could go back, the school had folded up. So I never did go back to my job. I did free lance stuff for awhile but now I take care of my granddaughter. That is more important to me.

      17 days ago
    • Leuky's Avatar
      Leuky

      I am still working but I am slowing down. I just don't want to be a drag on the office, but I'm trying to keep up.

      17 days ago
    • BarbarainBham's Avatar
      BarbarainBham

      GetItOut,
      Your oncologist can probably give you the best guess about how you'll feel, since the doctor is most familiar with your treatments and your type of cancer. If you have sick leave or disability insurance, it's definitely less stressful to stay home during treatment. Ask to speak with the Social Worker at the doctor's office for information on financial help.

      I have no information about it, but I think there is a temporary type of Social Security benefit you can apply for (NOT permanent disability).

      As far as "getting tossed" from your job, depending on several things like the number of employees they have, you may be legally protected by the U.S. EEOC (if your employer has 15 employees or more):
      https://www.eeoc.gov/laws/types/disability.cfm

      Cancer in the workplace:
      https://www.eeoc.gov/laws/types/cancer.cfm

      When you have time, check out the above links which include more links. Be sure to get familiar with FMLA and the Americans with Disabilities Act (ADA). The above links also give phone numbers to call if you have questions about "getting tossed" from your job. Please update us and feel free to run your employer questions by us.

      Best wishes.

      16 days ago
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    dan7264 wrote on GetItOut's wall

    Hey, we have the same fNHL. I am five years in remission. Mine was quite advanced stage IV, but I pushed through it and you can too. I am stronger and healthier now than before. Let us know how you are doing and if you have any questions as to what to expect.

  • GetItOut's Avatar

    GetItOut asked a questionNon-Hodgkin Lymphoma (NHL)

    Anyone get diagnosed as a stage higher than you were ultimately? I was first told stage IV but after lots of test and one surgery that

    6 answers
    • CancerChicky's Avatar
      CancerChicky

      My first oncologist was a debbie downer. He had me in the grave before we even started treatment. The second one, is much better. He is positive and supportive. I just don't understand why doctors want to put us down before we actually get down!

      3 months ago
    • geekling's Avatar
      geekling

      They (some doctors) think, I believe, that fear gives them better control over a patient or the statement excuses them for being unsuccessful with what they know.

      It would be nice to hear "I dont know how to help you but lets see if we can find someone who can."

      It took me 13 years and visits to (literally) over 100 doctors to get a diagnosis. Oh, and I also had to gain 65 pounds and the external tumor grew with the rest of me.

      Doctor myopia?

      Best wishes.

      3 months ago
    • Whitey61's Avatar
      Whitey61

      Yes, stage 3 before surgery pathology indicated it was a 4, Google Cancer Staging for a better understanding how it is done.

      3 months ago
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