• domhnall's Avatar

    domhnall wrote on GetItOut's wall

    How are you doing, GetItOut? Is yours a diagnosis that indicates treatment, or are they having you wait?

  • GetItOut's Avatar

    GetItOut asked a questionNon-Hodgkin Lymphoma (NHL)

    Working while on treatments?

    12 answers
    • BarbarainBham's Avatar
      BarbarainBham

      GetItOut,
      Your oncologist can probably give you the best guess about how you'll feel, since the doctor is most familiar with your treatments and your type of cancer. If you have sick leave or disability insurance, it's definitely less stressful to stay home during treatment. Ask to speak with the Social Worker at the doctor's office for information on financial help.

      I have no information about it, but I think there is a temporary type of Social Security benefit you can apply for (NOT permanent disability).

      As far as "getting tossed" from your job, depending on several things like the number of employees they have, you may be legally protected by the U.S. EEOC (if your employer has 15 employees or more):
      https://www.eeoc.gov/laws/types/disability.cfm

      Cancer in the workplace:
      https://www.eeoc.gov/laws/types/cancer.cfm

      When you have time, check out the above links which include more links. Be sure to get familiar with FMLA and the Americans with Disabilities Act (ADA). The above links also give phone numbers to call if you have questions about "getting tossed" from your job. Please update us and feel free to run your employer questions by us.

      Best wishes.

      3 months ago
    • domhnall's Avatar
      domhnall

      In my observation being able to work — or even just about doing anything IMHO — depends very much on the individual. Retired, I didn’t have to worry about work which for me was a good thing. My treatments (R-CHOP followed by radiation) ended at the end of July and I’ve been told I’m in remission. Of course I am happy and feel better, but I still don’t really have days 100% as I used to pre-diagnosis / treatment. I am still tired and a bit weak (nap and rest during da), balance issues (keep a cane close by), dry mouth, bald spot on back of head from radiation, and chemo brain — my bigggest “complaint”. I haven’ been yet able to walk / hike or significantly exercise (cardio, weights ) as before. There HAS BEEN improvement, but 50% of the time I can only do minimum amounts. It so happens I know two people (younger than I, one a man & the other a woman) who not only returned to work the same days of treatments (!!! ???) but — despite getting sicker than I ever did — were able to pretty much function close to before. They have occasionally had to stay down and rest for a day or two, but generally have been able to carry on as before. I don’t know how they do it, as their treatments were at least as rough as mine. I have never been much of a softy, so accepting my present “reality” has been difficult and discouraging — gratitude does help.

      about 1 month ago
    • BarbarainBham's Avatar
      BarbarainBham

      GetItOut, I hope everything is working out with your job and treatments. Please give us an update.

      about 1 month ago
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  • dan7264's Avatar

    dan7264 wrote on GetItOut's wall

    Hey, we have the same fNHL. I am five years in remission. Mine was quite advanced stage IV, but I pushed through it and you can too. I am stronger and healthier now than before. Let us know how you are doing and if you have any questions as to what to expect.

  • GetItOut's Avatar

    GetItOut asked a questionNon-Hodgkin Lymphoma (NHL)

    Anyone get diagnosed as a stage higher than you were ultimately? I was first told stage IV but after lots of test and one surgery that

    6 answers
    • CancerChicky's Avatar
      CancerChicky

      My first oncologist was a debbie downer. He had me in the grave before we even started treatment. The second one, is much better. He is positive and supportive. I just don't understand why doctors want to put us down before we actually get down!

      6 months ago
    • geekling's Avatar
      geekling

      They (some doctors) think, I believe, that fear gives them better control over a patient or the statement excuses them for being unsuccessful with what they know.

      It would be nice to hear "I dont know how to help you but lets see if we can find someone who can."

      It took me 13 years and visits to (literally) over 100 doctors to get a diagnosis. Oh, and I also had to gain 65 pounds and the external tumor grew with the rest of me.

      Doctor myopia?

      Best wishes.

      6 months ago
    • Whitey61's Avatar
      Whitey61

      Yes, stage 3 before surgery pathology indicated it was a 4, Google Cancer Staging for a better understanding how it is done.

      6 months ago
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