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    Gizz asked a questionColorectal (Colon) Cancer

    Stoma Damange

    5 answers
    • cllinda's Avatar
      cllinda

      It took me almost a month before my nurse found the proper brand of products that I could use and would stay on my body. My skin was bleeding and I was getting so discouraged. The thing would leak in the middle of the night and I would be showering and changing it again. My belly had kind of a weird shape and it took the ostomy nurses quite a long time to figure out the right product for me. I really couldn't do much because I was always afraid of leakage or product failure. I think it took three different brands and lots of tears before we found a solution to help me. I even considered suicide because I was so distraught.
      Talk to your team. Find a different nurse to help you find the right combo of products to use. Rings, puddy, powder, and so much more is available. But you have to keep trying. Keep asking the nurses. Keep going to get new products. Get help.

      about 1 month ago
    • JaneA's Avatar
      JaneA

      You can also call Hollister, Convatec or Coloplast and ask to speak their wound care nurse. They are excellent. I had terrible burning of my skin when I began my mop-up chemo after my APR surgery. The Hollister nurse told me how to "crust" the area around my stoma with stoma powder to help protect and heal my skin. She also suggested switched to the CERA PLUS barrier which helps heal the skin. She sent me samples of that barrier, and my skin healed right up with that. We'll all here to help you through this.

      about 1 month ago
    • Gizz's Avatar
      Gizz

      Thank-you all for your respond. I was just at my wits end. But I went to the wound center and had a different nurse this time who took the time to deal with my issues and she had come up with something that is working so much better. So far no pain for a whole day and it felt good to eat some stuff again without worrying what my poop will cause. I have also heard of the eakin seals and how they hold up better.

      about 1 month ago
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    Question: Stoma Damange

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    Gizz shared an experience

    Procedure or Surgery (Laparascopic colon surgery): Surgery went great, out in 2 two days. Belly really sore and swollen and trying to get use to a stoma and taking care of it is the pits.

    1 Comment
    • JaneA's Avatar
      JaneA

      Did they send you home with a home health nurse to visit a couple of times a week? They helped me learn how to take care of my stoma. Adjusting to a stoma at first is challenging, both mentally and physically. But it does get better. The best Ostomy group is on Inspire. They post pictures and how to take care of every problem that comes up. And you can vent there about your frustrations. I highly recommend that. I am almost 5 years out from that surgery, and I'm doing fine. Honestly, I'm doing fine. I'm active and exercise and go on day trips where I'm on a bus with people going to botanical gardens, etc. and I manage just fine. You will be okay, I promise. Message me anytime that you need to talk.

      2 months ago
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    Gizz posted an update

    Well in 3 days I will be having my surgery, robotic-assisted laparoscopic low anterior resection with creation of a diverting loop ileostomy, Jan. 28th the same day as Greg. Will be thinking of him. Good luck Greg! Yes I am having a ileostomy, have to keep saying this as never thought I would be going through anything like this in my life. At least I will only have this till I am healed and done with chemo. Then another operation to reattach me. I just hope my stay in the hospital doesn't follow my stay when I had lung surgery. I never thought they were going to let me come home. My body took awhile to recover.

    1 Comment
    • JaneA's Avatar
      JaneA

      I've been where you are, except that I had APR surgery (removal of sigmoid colon, rectum and anus with permanent colostomy). I was so scared. But I was Stage IV and this surgery was potentially curative. So I just had myself a good cry a couple of days before the surgery and then was ready to get this thing done.

      I had my surgery robotically and was discharged in 2 1/2 days. The pain was controllable with Norco (tylenol and codeine). Walking really helps, even tho it does hurt to get up out of bed.

      Please feel free to reach out to me with questions. Best wishes for a complication-free surgery.

      2 months ago
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    Question: Port or not?

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    Gizz asked a questionColorectal (Colon) Cancer

    Port or not?

    6 answers
    • Bengal's Avatar
      Bengal

      I would think of it's only 3 infusions you might forego the port. If you read some of the comments to the question on port pain, sometimes they can hit a nerve during the insertion surgery which can set off a whole new set of problems.

      3 months ago
    • cllinda's Avatar
      cllinda

      It really depends on how you feel about a port. But it can be used for blood draws, dye for tests, and other things.
      In my case, I was a hard stick, and had chemo for a whole year. So it was a good choice.

      3 months ago
    • PattyF's Avatar
      PattyF

      If you are going to have only 3 infusions, then I would not get the port. I had a port inserted because I had 12 rounds of Folfox and it was good to have. I will say that whenever the port was accessed, it was a more painful XXX than using a vein in my arm.

      3 months ago