• GregP_WN's Avatar

    GregP_WN wrote on Gjsrs's wall

    Welcome to the WhatNext network! We are happy you found us but sorry for your reason to be here. There are a great bunch of people here that are willing to coach you through your issues that will come up. It's good to know that other people have been through exactly what you are facing now and have gone on to a good life afterward.

    If you have an issue you need help with, just post it on the questions page, someone will see it and add their own personal experiences to help you.

    If you see a question posted that you have experience with please at your answer to that question. We all have issues we need help with, you might have the answer someone needs.

    We wish you the best and if you have any questions about the website or how to post something drop us an email at contactus @ whatnext . com and someone will help you out.

    Greg P
    Community Mgr. / Social Media Mgr.
    3X Survivor

  • Gjsrs' Avatar

    Gjsrs asked a questionSarcoma - Adult Soft Tissue Cancer

    Help health going down hill since lose of almost all teeth

    • po18guy's Avatar
      po18guy

      Your cancer facility must be familiar with this problem. Check with their patient assistance office for possible leads. Maybe call a college or university dental school, or your state's dental association to see if they offer low or no-cost dental reconstruction.

      20 days ago
    • GregP_WN's Avatar
      GregP_WN

      I have gone through this exact thing over the last 11 years. First, I was treated with chemo and radiation in 88 then again in 89, then more concentrated radiation in 2018. After the last radiation, my teeth started going down. Wearing down like an old horse's mouth, cracking, breaking in half, etc. I had a few pulled before the oncologist that has followed me from the beginning of my last diagnosis told me I was at risk of Osteoradionecrosis (sockets won't heal where the tooth is pulled) because of the reduced blood flow, destroyed tissue, weakened jawbone, and other problems that radiation leaves us with. They wanted me to have hyperbaric oxygen treatment before and after having any teeth pulled, and then they needed to be pulled by an oral surgeon not just yanked out by a dentist. All of that equalled 75K that I didn't have. So, I eventually had them taken out by the oral surgery dept. at my facility.

      As for cost, just having them all taken out by oral surgery was going to be around 8K, I didn't have it and my sorry insurance doesn't cover dental work. I started looking for help at my facility which is a research hospital with a Medical University attached. First I got no help. Then I contacted the American Cancer Society and they started looking for help. It took a year, but eventually, I was able to have them all taken out and the costs were taken care of.

      So the quick answer is to start looking for help now because it's most likely going to take some time. Ask the social worker at your hospital/clinic where you are getting treated, contact the American Cancer Society and others that your facility might suggest.

      Help is out there, but it's like finding a needle in a haystack and just takes time.

      20 days ago
    • KB2013's Avatar
      KB2013

      There are free dental service non-profits in some states but, when I called the one in my state, they said they only cover basic dental work and they had a long wait line but, that’s just the one in my state. Also, for basic care, contact the dental school nearest you. If you choose a private practice and you have a good credit rating, you can apply for a loan through Care Credit which offers interest free loans for many months (interest free if paid off early) or go through a bank for a longer loan period with lower interest rates over the long term. CareCredit has been around a good while now and is a product of Synchrony Bank. Good luck!

      18 days ago
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    Gjsrs shared an experience

    Side Effects (Kidney damage): AFib heart, severe dental damage, front of right pelvic hip replaced/one is now shorter than the other, minimal functioning right kidney, lymphedema, nerve damage right leg, onset of migraines.

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    Gjsrs started following

    User: GregP_WN

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    DaveWaz wrote on Gjsrs's wall

    Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

    Wishing you the best.

    David
    Founder, WhatNexter