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    grandmafran wrote on Casablanca's wall

    Hello Casablanca. You have come to a good, safe place and I hope you are able to find the answers to your questions and sense the hope that reverberates through all these testimonials. While it is a shock to find out you have lymphoma, it will also bring peace into your life to know that it is a very treatable disease.
    I was diagnosed at Stage IV and have traveled this road for 18 years now. The roller coaster has many ups and downs. Just hold on tight and you will be fine.

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    grandmafran wrote on dcfitz's wall

    What grade and type of NHL? If it is low-grade (indolent) it can be treated as a chronic illness. If it is mid or high grade it can be treated more intensely and often cured.
    Every person's illness is unique and your experience with your mom was terrible but your experience with your husband's illness will be quite different.
    I was diagnosed with Stage IV, NHL and my oncologist called it "bad actor" lymphoma as it seemed to pop up and respond very differently than they would expect.
    Yet, here I am 18 years later. I won't say it has always been easy but I wouldn't trade them for anything. Chin up and be positive. There is much to be hopeful about.

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    grandmafran wrote on cjnana's wall

    Welcome to the site. I hope you find it as interesting and valuable as I have. I am curious as to whether your NHL advanced from Stage 1 to require chemo and radiation? How are you doing with chemo? I hope you are feeling good and full of hope, as you should be. Catching it at Stage I is truly a blessing.

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      Thanks for the welcome. I was actually diagnosed at stage 2B. I did choose to have chemo over waiting and seeing. Now in remission and doing maintenance chemo every other month. It was a blessing to catch it early and that my cancer responed to chemo so quickly. I am still trying to cope with the whole thing though. It terrifies me. I have lost one great grandparent, two grandparents, and a brother to cancer. My sister has had a cancer, as has my mother, grandmother, and aunt. I hit every branch imaginable coming down out of my tree! :) This site has helped tremendously so far. It took me this long to reach out for help. So thank you again for your welcome.

      almost 4 years ago
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      You know odds are useless to worry about. They have classes to teach researchers and doctors how to establish odds. No one in my family had cancer and I was healthier than most of them yet the 20,000 to 1 odds against getting it didn't matter much when I was the 1 who got it.
      The experiences of each person in your family is their's alone. It has nothing to do with you and you are a unique person with no reason to believe that you will follow the same path they did.
      You are going to be fine. Believe in it. Grieve for those you love who have cancer but separate yourself from their disease. Do all you can do to help yourself get better and put the rest in God's hands. Then try to relax and enjoy each day, even if some of them stink. It is still your day and your experience. Savor the good ones and make wonderful memories.
      One day you will wake up and cancer won't be the first thing you think about. It will surprise you and probably smile a bit.

      almost 4 years ago
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    grandmafran wrote on emnurse73's wall

    Everyone seems to have a different experience with the CHOP treatment but a fairly consistent mild time with the Rituxan. When I was going through chemo I would go directly home and to bed while others I met would go off to soccer games or back to work.
    Don't anticipate you will have problems but know that your oncologist has meds to help you with any side effects you may experience. I had trouble sleeping but didn't think to ask for something for weeks.
    Also, just because a side effect isn't common doesn't mean you aren't truly experiencing it. I don't know how many times I was told that they never heard of this or that. This site will help you recognize a lot that others have dealt with and be reassuring. Best of luck and God bless.

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    grandmafran wrote on SacDad's wall

    Welcome to the site. I hope it brings you lots of hope and comraderie with your new diagnosis. I was diagnosed about the same age you are now and it was so reassuring to talk to some NHL survivors who had lived many, many years with this disease. My diagnosis came way before some of the advancements in the treatment of NHL. I'm 18 years out now and one day you will be cheering on someone yourself. God Bless.

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    grandmafran wrote on lmi's wall

    Hello there. Welcome to a nice group of very positive people. I was also diagnosed with NHL B-cell, Stage IV. That was 18 years ago and I am still kicking! Having someone to travel with is always the best way to go and you have many new friends here to help you on your journey.