• GregP_WN's Avatar

    GregP_WN started following

    Question: Blood Transfusion

  • GregP_WN's Avatar

    GregP_WN wrote on Pathherb's wall

    Hello and welcome, we are happy to have you with us. Please feel free to join in the conversations. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started with the help you need right now.


    There are also subtypes listed on this page to narrow down the type of cancer to match your dx. Also, if you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the database to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall.

    Thanks for being with us and let me know if I can help you find any information on the site.

    Just click this link to invite them to join. http://www.whatnext.com/recruit-a-friend

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  • meyati's Avatar

    meyati wrote on GregP_WN's wall

    I've tried several ways to post an answer about ice water therapy for neuropathy--Posting won't work- Ice does work--anyway

    Greg-Statins are notorious for causing neuropathy in patients at are sensitive to statin. I had ice packs on 6 times a day from my hips down. With the nature of ice packs--I had huge bags of frozen cut corn and mixed vegetables that I draped over me for 20 minutes at a time.

    It took 3 years of this to get back to a normal. One day, my feet were feeling pretty good. I decided to drive myself-I hadn't been able to drive for quite a while. I got into an automatic, and my feet got stuck--the neuropathy was in my ankles and calves. I had to use my hands to pull my feet out. I went in the house, got my vegetable packs out, and I cried while icing my legs and feet. .

    Another thing that really helped was doing hamstring exercises after the ice packs, as that forced the muscles to move and increased circulation. I know that in diabetes and statin neuropathy that neuropathy leads to amputation.

    I would use ice baths based on my experience. Also the cold feels so good.

    • GregP_WN's Avatar

      Thanks for the note Meyati, are you trying to post on that thread by clicking on a link that's in the daily digest? Or are you going to the post directly on the site?

      about 10 hours ago
    • meyati's Avatar

      I'm doing both----Sometimes time seems to be the factor. So I close out- re-enter through the link for daily questions- paste and click---sometimes that works and sometimes it doesn't work-mostly works. Then if that doesn't work, I completely close out "Whatnext-- type the URL in the browser, and paste the answer in. That has about a 50% chance of working. Today that didn't work--

      Mostly I give up when that happens-it's like a 15% chance of failure-but consider how seriously neuropathy affects our daily lives, serious long term effects, and psychologically us and our families, I thought that I'd pursue answering. For the last 6 years, I've been driving 5-on-the-floor, and the truck and the Mustang have nice heavy duty clutches.

      about 10 hours ago