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    BuckeyeShelby wrote on gttngd's wall

    Hi gttngd. Welcome to WhatNext. There are lots of great people here. If you have any questions, please use the question tab above -- that way everyone will have access and you'll get a quicker response. I'm glad you found us but sorry for circumstances that led you here. Wishing you the best.

  • gttngd's Avatar

    gttngd shared an experience

    Loss (Body part/function): Lung damage, skin rash & joint pain from transplant.

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    gttngd shared an experience

    Celebration (Birthday): I have celebrated 3 years of my re-birthday! I am 100% donor cells 3 years later.

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    gttngd shared an experience

    Other Care (Hospitalization): Hospitalized for one month, lodged in an American Cancer Society housing, home care from PT, OT, RN from Lifetime Care. Husband is caretaker. Had several hospitalizations since 2016 transplant for acute illnesses.

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    gttngd shared an experience

    Side Effects (Bone thinning (osteoporosis)): There are at least ten side effects on the list of side effects. I experienced side effects of chemotherapy, the stem cell transplant (neutropenic), idiopathic thrombocytopenia; weight loss, anemia, dry eyes, mouth sores, constipation, bone pain, osteoporosis from steroids, weakness & inability to walk unassisted. All comes with a stem cell transplant in an older patient. Recovery was about 2 years. Chronic GVHD of the lungs now but doing well.

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    gttngd shared an experience

    Oh No (Just Diagnosed): Diagnosed with a very rare bone cancer; Myeloproliferative Neoplasm that was Myelofibrosis.